Spoons of Salt-POTS Support Group

  • US$140.00
    raised of $2,500.00 goal goal
5% Funded
4 Donors
Help this ongoing fundraising campaign by making a donation and spreading the word.
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POTS, which stands for Postural Orthostatic Tachycardia Syndrome is a syndrome which is relatively common and affects many people, mostly women, between the ages of 15 and 50. POTS affects the entire autonomic nervous system, which includes all of your natural bodily systems and functions. From gastrointestinal issues, kidney and liver malfunction, blood pressure, pulse, to temperature regulation, POTS is a disability some of us have to deal with on a regular basis. Upon diagnosis of POTS, it is very difficult and devastating to come to terms with. I personally felt it was life-changing. I went from being very active, fun-loving and spontaneous to being unstable, exhausted, sickly and dependent on others. When a person with POTS stands up, their pulse skyrockets to 140's-170's and the blood pressure drops, causing the person to feel faint or actually faint. And this is just one of the symptoms that comes with having POTS. You feel like you lose a chunk of your independence, which is quite hard for most to deal with.

I came up with the idea for Spoons of Salt with my therapist when we were discussing the fact that there are no support groups for POTS or any other invisible illnesses anywhere to be found. SOS Spoons of Salt was created as an outlet and community for myself and others who have POTS. I made this organization as a nonprofit because it benefits so many people. I wanted a support group for myself but have come to find out that there are so many other people in my community who have the same need and could use the help and guidance I am able to provide.

The goal financially is to be able to help others in the community who have POTS get the care and support they need. There are many items that make living with POTS much more manageable and safe and one of the goals of this group would be to provide equipment for members. A few of the items that are needed are support socks, saline drinks, blood pressure monitors, shower chairs, grab rails for showers, wheelchairs, walkers and stairs lift chairs. Additionally, many of the members don't have vehicles, or are unable to drive due to the illness and would benefit greatly from vouchers for a ride service such as Uber or Lyft. It is difficult to get to support group meetings, disability meetings, social security offices, physical therapy, doctor's appointments and the weekly saline infusions when you are unable to drive. I also feel that having in-person support meetings is crucial to this feeling group like a community. Please help to raise awareness and represent a very under-talked about illness that affects many people in your community.

Fundraising Team

Hello, My name is Chelsea and I have POTS. I created this organization when I was looking for a support group for POTS. I found none and fixed that!

Hello, My name is Chelsea and I have POTS. I created this organization when I was looking for a support group for POTS. I found none and fixed that!

  • Sarah Rupp
  •  
  • Social Media Sharing

Donors

  • Gunhild Carling
  • Donated on Apr 16, 2024
$50.00
  • Clark
  • Donated on Feb 28, 2024
$35.00
  • Guest
  • Donated on Feb 23, 2024
Amount Hidden

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Donors & Comments

4 donors
  • Gunhild Carling
  • Donated on Apr 16, 2024
$50.00
  • Clark
  • Donated on Feb 28, 2024
$35.00
  • Guest
  • Donated on Feb 23, 2024
Amount Hidden
  • Anonymous
  • Donated on Feb 22, 2024
  • I can't wait until this campaign gets off and people educate themselves on POTS. I'm donating for my fellow POTS patients.

Amount Hidden

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US$140.00
raised of $2,500.00 goal
5% Funded
4 Donors

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