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I have spinocerebellar ataxia and my headaches are back. We don't have money for medication to help me get treated.
What is spinocerebellar ataxia?
it is a rare condition in the cerebellum affecting muscle coordination, balance and speech.
Living with spinocerebellar ataxia
Patience. Everything is in slow motion. I mean, I'm slow so everything seemed to be in slow motion.
Aside from that, the cost. We're poor and covering for cost is excruciatingly stressful. There is also doubt of my recovery but honestly I can feel that there is. Doctors think it's caused by a genetic mutation or because of my environment. I can tell that it's because of the latter. See, everything is just so stressful right now. I mean, everything. From taking a bath to whatever. Every. Damn.Thing.
I get it that there's no cure for ataxia. I just want my headaches to go away.
My doctors recommended I have genetic testing but it's not available in our country. Can you help me get treated?
- Jecil Mugas
- Fund Captain
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