Sophia’s Challenge

Sophia was born on April 16, 2013. Although she was full term, she was under weight and showing signs that there were going to be some difficulties. As a mother of six healthy babies of my own I knew when I first saw her that she had something going on, starting with her eyes, we were informed that she is blind. Not so bad we as a family can work with that. Then comes the diagnosis that she has diabetes insipidus this is when her kidneys do not retain the fluid long enough to pull the nutrients out her body needs. The medication for this is very expensive and not cover by any medical plan, without this medication Sophia will die. Moving on, our Sophia has three cysts in between the two hemisphreres of her brain and has already gone through brain surgery and will need more as she grows.Her brain never developed into two completely separate hemishperes, causing more problems. Sophia's pituitary gland is not working the way a normal pituitary gland does. This gland controls the bodies hormones. Sohpia is now 17 months old and weighs less than 17 pounds, She operates at the level of a six to eight month old baby, she will need on going support through out her life. As of today, I have learned that this sweet girl is to have more medication and physio equipment.