Sobi Charity Ride for the European Haemophilia Consortium 2017
Fundraising campaign by
Michael OMalley
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kr1,000.00raised of kr4,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Hi!
Together with a team of Sobi colleagues, I will be cycling 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to create awareness of, and raise money for, the European Haemophilia Consortium (EHC).
The EHC is a non-profit organisation that works on improving the quality of life of people living with rare bleeding disorders and promoting patients rights. Working with haemophilia I realise the important work that EHC does and hopefully this cycle ride can contribute in a small way.
Please support the EHC by donating an amount of your choice using the link below!
Thank you!
Michael
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ to develop and advance haemophilia care.
Organizer
- Michael OMalley
- Campaign Owner
Donors
- Kristina Lindsten
- Donated on Sep 05, 2017
- Lis Bruhn-Linder
- Donated on Sep 05, 2017
HEJA HEJA
No updates for this campaign just yet
Donors & Comments
- Sofia Bergenstråle
- Donated on Sep 07, 2017
Heja Mike!
- Kristina Lindsten
- Donated on Sep 05, 2017
- Lis Bruhn-Linder
- Donated on Sep 05, 2017
HEJA HEJA
- Ilias Kampanis
- Donated on Sep 05, 2017
Still looking good in tights! Keep on fighting my friend!
- Maria Öhman
- Donated on Sep 05, 2017
- Lisa Osterling Koskinen
- Donated on Sep 05, 2017
- Anonymous
- Donated on Sep 01, 2017
Heja Mike!