Sobi Charity Ride for the European Haemophilia Consortium 2017

Fundraising campaign by Michael OMalley
  • kr1,000.00
    raised of kr4,000.00 goal goal
25% Funded
7 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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Hi!

Together with a team of Sobi colleagues, I will be cycling 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to create awareness of, and raise money for, the European Haemophilia Consortium (EHC).

The EHC is a non-profit organisation that works on improving the quality of life of people living with rare bleeding disorders and promoting patients rights. Working with haemophilia I realise the important work that EHC does and hopefully this cycle ride can contribute in a small way.

Please support the EHC by donating an amount of your choice using the link below!

Thank you!

Michael


About the EHC

The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.

About haemophilia

Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.

About Sobi

Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ to develop and advance haemophilia care.










Organizer

  • Michael OMalley
  •  
  • Campaign Owner

Donors

kr100.00
  • Kristina Lindsten
  • Donated on Sep 05, 2017
kr100.00
  • Lis Bruhn-Linder
  • Donated on Sep 05, 2017
  • HEJA HEJA

kr100.00

No updates for this campaign just yet

Donors & Comments

7 donors
kr100.00
  • Kristina Lindsten
  • Donated on Sep 05, 2017
kr100.00
  • Lis Bruhn-Linder
  • Donated on Sep 05, 2017
  • HEJA HEJA

kr100.00
  • Ilias Kampanis
  • Donated on Sep 05, 2017
  • Still looking good in tights! Keep on fighting my friend!

kr100.00
  • Maria Öhman
  • Donated on Sep 05, 2017
kr200.00
  • Lisa Osterling Koskinen
  • Donated on Sep 05, 2017
kr200.00
  • Anonymous
  • Donated on Sep 01, 2017
kr200.00

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kr1,000.00
raised of kr4,000.00 goal
25% Funded
7 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities