SaveMeFromMyIllness
Fundraising campaign by
Mary Angelene Suyat
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₱5,000.00Donated So Far
Campaign Story
- I am Mary Angelene Suyat, 36 years old from Lipa City,Batangas, Philippines. My journey with lupus SLE (Systemic Lupus Erythematosus) began since 2003, and while it's required some major changes in my life, I'm learning how to live a full life with lupus. It is an unpredictable disease and you'll never know when it's gonna attack and will flare up. I will never forget the day I got my official diagnosis of SLE. I had some of the telltale symptoms of lupus, like joint pain in my fingers that just wouldn't go away, having fever in the evening, butterfly rash around my face, hair and weight loss,. It wasn't until my doctor ordered blood tests that it all lined up. Remembering some of my sufferings after I was diagnosed when I'm not being able to get out of bed, literally, because of body aches. Crying while going upstairs and downstairs at school where I taught, because of my joints hurt so bad. There was a time when I was so sick I may have died. My BP was so high maybe 200/110 it can hardly be read. Or the time my RBC got so low I could barely stand up. Or the time my heart had irregular beating. I know it's a total adjustment with my active life as a teacher of 12years. It's hard to talk to people about what you're feeling of having Lupus and have them really understand why and how you're so tired. I have been in and out of the hospital when my Lupus is flared. On 2015, I had to be rushed back to the hospital with heart, respiratory and kidney failure. I underwent dialysis for 2months. 2-3x per week due to congestion. I also underwent renal biopsy which revealed Lupus nephritis. I get pockets of time when I'm not sick. I've not been confined after 2015. These days of good health, I cherish. It can all be taken away in an instant! For me, stress is a huge trigger for inflammation because 3years after, I had a bilateral leg edema, followed by a decreasing urine output. Then 1week after I had edema on the right leg and my lab results showed my creatinine went up (4.76 mg/dl) and this led to a decision of an expert surgeon to go insert a catheter in my neck for emergency dialysis. During my hospitalization, I thought I was going to die. Until now, year 2019 I am undergoing hemodialysis treatment (M,W,F) for me to go on with my life. Together with injections, monthly monitoring of laboratories, renewing of dialyzers every after 5 usage, I am spending a lot of money that's why we are going through a difficult time right now. But I thank God every single day with my ongoing dialysis because until now I didn’t need a transplant. I am so grateful for my doctors who did and still do everything in their power to keep me fighting. I’m not going to say I didn’t cry sometimes. I know it's not the end of the world with what I am experiencing, it is just a sacrifice for other people's blessings to come along. I am so grateful for still being here. After all these, I managed to keep moving and stay positive by surrounding myself with positive people. Life is short! Hoping for your kind heart, I am asking for a little help and support for my treatments and maintenance medications. I'm sure God will continue to bless all of you.
Organizer
- Mary Angelene Suyat
- Campaign Owner
- Lipa City, PH
Donors
- Anonymous
- Donated on Mar 15, 2019
- J U
- Donated on Jan 12, 2019
No updates for this campaign just yet
Donors & Comments
- Anonymous
- Donated on Mar 15, 2019
- J U
- Donated on Jan 12, 2019