Save Little Leon from Biliary Atresia

  • US$860.00
    raised of $40,000.00 goal goal
2% Funded
16 Donors
Raised offline: $2,866.00
Total: $3,726.00
Help this ongoing fundraising campaign by making a donation and spreading the word.
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Hello, I'm Leon, born on April 11 this year via cesarian section. I had neonatal pneumonia and stayed at NICU for 7 days. While the doctors are checking my x-ray, they've found out that I have dextrocardia with situs inversus totalis. It means that my heart is on the right side and my organs are in mirror image. So mama and papa thought that maybe that's just it.

I was almost a month old when my pediatrician noticed that I'm still jaundiced. My poop color turned pale yellow to white when I turned 2 months old. They suspected that I have Biliary Atresia. After all the lab tests and biopsy, only the cholangiography procedure proved I have it. I just had my Kasai Operation when I'm almost 3 months old. Pedia Surgeon told us that I only have a small chance for a successful operation.

We sincerely ask for your help and we don't have enough money to support the liver transplant operation. It costs P4-5 million philippine pesos (approximately $80,000+) in the Philippines or in Taiwan which have high success rates of operation. Though we are also hoping for a miracle to happen and praying to God that everything will turn out fine, financially, you can help me extend my life as well. Our savings is almost exhausted from my Kasai Procedure and from all the medical and hospital bills. We sell t-shirts, ballpens, and held a raffle-for-a-cause recently and my Dada works hard to earn money while Mama does online selling while taking care of me. Mama and Dada wanted to see me grow up and have a normal life. I'm their only child and my parents waited for me for over 6 years after two miscarriages.

You can also help me by liking, following, and sharing my page to your love ones and friends in facebook www.facebook.com/savelittleleon


Organizer

I am a mother of a brave baby, Leon.

I am a mother of a brave baby, Leon.

Donors

  • J A
  • Donated on May 31, 2018
  • Praying for Leon's recovery

$40.00
  • Tina Toledo
  • Donated on Mar 23, 2018
Amount Hidden
  • GILL CARR
  • Donated on Mar 02, 2018
$250.00
Aug 16

Update about our child

Update posted by Katrina Escolastico at 03:50 pm

I'm very sorry and it's been a while since my last update about my son Leon. We've been busy with our jobs and saving up for his liver transplant. A lot happened when the pandemic started. We moved to my parent's house so we won't need to pay for rent. . . . .

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0
Feb 17

Leon's health status and developmental assessment

Update posted by Katrina Escolastico at 06:29 am

Hi, it's been a while since our last update.His Kasai procedure still works and it's been 2 years when he started taking antibiotic prophylaxis. His doctor said that she might take him off antibiotics on our next follow up check up. He had stomach flu recently and hopefully it won't. . . . .

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0
Jul 09

It's been a while.

Update posted by Katrina Escolastico at 02:56 pm

It's been months since our last update about Leon. No hospitalization for a year now and hopefully he won't have any until he needed transplant. We still pray to God that he won't ever need it. Leon celebrated his 2nd birthday last April. We don't do birthday party to save. . . . .

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0
Jan 17

The last 5 Months Summary of Leon's Health

Update posted by Katrina Escolastico at 04:57 am

Hi, good day everyone!Our last update was about my son's health was August 2018. So far, Leon is still doing well and we somehow follow his doctors' monthly check up and vaccines. He just had a few colds, coughs and fever this past few months and nothing serious about it,. . . . .

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0
Aug 16

We've been staying at home for 3 months now

Update posted by Katrina Escolastico at 02:56 pm

Hi, it's been a while since the last time I've posted for an update about our son, Leon. Last May, he was confined because of recurrent cholangitis and got home after a week of IV antibiotics. God is good because after that confinement, he did not have cholangitis the following. . . . .

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0
May 05

Confined again for a week

Update posted by Katrina Escolastico at 01:36 pm

Leon was confined once again for more than a week after having fever that goes up and down for a week. He was treated for cholangitis and suspected of having viral infection. We just got home today. He lost weight again and been between 8-9kg since December 2017. I just

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0
Apr 07

At home for more than a month

Update posted by Katrina Escolastico at 03:13 pm

Leon's monthly lab today is good according to his pedia gastro. Then from cefixime, he shifts to cefuroxime as his prophylactic antibiotic. I also asked her about the spider veins in his stomach for which she answered that it is portal hypertension, just being well maintained through the help of

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0
Feb 14

Back at the hospital again for cholangitis

Update posted by Katrina Escolastico at 09:02 am

Hi, we're back again here at PGH. It is such a roller coaster ride having a baby with biliary atresia. Leon had fever and been here at PGH more than a week now. His first 2 I.V. antibiotics did not resolve his recurring fever. This 3rd strong antibiotic cleared his. . . . .

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0
Jan 12

Leon have stomach flu and pneumonia

Update posted by Katrina Escolastico at 06:40 am

It's been a while since I've updated Leon's page and for 2 months after his bouts of cholangitis, we stayed at home but currently we're back at the hospital for having pneumonia and stomach flu. We don't really know where Leon got it but me and his dad also got

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0
Nov 04

Catching up with his vaccines

Update posted by Katrina Escolastico at 06:30 am

It's been 4 days since we're out of the hospital now. We decided to go to his pedia to have rotavirus and pneumococcal vaccines. 2nd dose for both and he's turning 7 months next week. He's below average in weight but his height and head circumference are not in the

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0
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Donors & Comments

16 donors
  • J A
  • Donated on May 31, 2018
  • Praying for Leon's recovery

$40.00
  • Tina Toledo
  • Donated on Mar 23, 2018
Amount Hidden
  • GILL CARR
  • Donated on Mar 02, 2018
$250.00
$25.00
  • Anika Gallagher
  • Donated on Feb 13, 2018
$100.00
  • Anonymous
  • Donated on Oct 05, 2017
  • Please stay strong. You are not alone.

Amount Hidden
  • Anonymous
  • Donated on Aug 24, 2017
  • Stay strong, Little Leon

Amount Hidden
  • Katrina Escolastico
  • Posted On Aug 10, 2017
  • Thanks to all donors. We’ve been praying that Leon will be okay after this.

  • Anonymous
  • Donated on Aug 09, 2017
Amount Hidden
  • Christina Pamparo
  • Donated on Aug 09, 2017
  • God Bless you Leon. May God's gealing power be upon you.

$20.00
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Followers

5 followers
Ice CD
Clément Falda-Buscaiot
Fannina Bautista
Rayzel Terucha
Amor Pedrajita

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US$860.00
raised of $40,000.00 goal
2% Funded
16 Donors
Raised offline: $2,866.00
Total: $3,726.00

Help this ongoing fundraising campaign by making a donation and spreading the word.

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