My name is Adam, I am 3years old and I have a serious genetic illness that is very very very rare: trisomy 9P with translocation chromosomal of 13q and deletion of 13p. The doctors said I should not be alive, but I have beaten science and statistics! Isn't this a super power for a Super heroes like me?
Every day this illness cause me to have a important delay in my development: physical issues, gynecological issues, dysphasia, trouble with chewing make me at high risk for choking, gastric reflux, strong vision issues, problem with my feet and ankles requiring special care, I am smaller than most kids (in weight and size), I have anemia and tons of other little things. I have hyperlaxity and because of that among other things I must do lot of exercise every day. At 23 months I am not yet walking, and even if I am getting a bit heavy my parent continue to carry me regularly . I consistently throw fits, I cannot control myself very well. I require lot of time, attention, patience and hugs, and I am very cuddly and loving. The only way I can make myself heard is by crying, I cannot point at things or speak. The doctors say that I will most likely have a moderate to severe intellectual deficiencies, but it a bit early for final diagnostic on this as I am still very young. I met a lot, a lot of people this year so far: I am seeing 16 specialists! I have tons of appointments every week i cannot miss! I love car rides which is a blessing for my parents, since we have to drive far to get the proper care. :)
My parents met a doctor that told them a hyperbaric chamber could help my sick cells to perform better by being stimulated by hyperoxygenation . This chamber could help me improve my development (intellectual, physical, reduction of tantrum, etc). My parent would really like to help me develop better to my full potential by using this equipment, but it is very expensive - 20 000$. My mom is currently ending her maternity leave but is uncertain if she will be able to go back to work because of all the energy necessary to help me. My dad works hard every day to save enough money to be able to afford the chamber. I started my treatment on DEC 17 2017, I am currently renting a hyperbaric chamber while waiting for my parent to purchase my very own chamber. Can you help me and my parents save enough money to get the chamber so I can show my little brother that I am the BIG brother?