Aloha oi, I'm Lorna Potter, mother of Tiana Potter age 30. My daughter has Lupus and epileptic seizures, as well as Von Williebrand disease ( a blood disorder ) and raynauds syndrome from lupus. We must travel to the island of Oahu every month (7-14 days or more) for her illnesses. We live on the island of Hawaii (Big Island), and there are no specialist on our island that can care for her. All her physicians are on Oahu and she sees 3 neurologists, rheumatologist, urologist, cardiologist, oncologist/hematologist, retina specialist, and a otolaryngologist (lupus has affected her vital organs in some type of way and her eyesight), we've been going to Oahu since October of 2013. She has grand mal seizures since 11 months old. Since lupus has retrogress she now has complex partial seizures several times a day. She's on seizure, lupus and other medications. Tiana has been hospitalized fourteen times since October 2013.
We are in need of financial assistance for airfare, hotel, rental car, medical and hospital bills and food as we are going to California soon for better medical care for Tiana.
Tiana's dream is going to Japan and to see cherry blossom festivities before she looses her eyesight.
I'm humbly asking for your help in our fight to keep Tiana with us for a better quality of life!
Thank you very much.
Update 8/1/16 With the help of the lupus and epilepsy foundations. Tiana and I will be traveling from Hilo Hawaii to Southern California soon for Tiana's journey for a better quality of life. We ask for your prayers. God bless. Aloha