At age 26 had Acute Myeloid Leukemia, relapsed 4 times, gone into ICU thrice, trying to stay alive.

Update posted by Edwin Chen On Oct 12, 2019

Dear all,

Thank you for your kind donation and your love and support during this period of difficult time for the family.
We have closed this fundraising.

We miss Edwin dearly. Please continue to share Edwin's story if he has inspired or touched you at some point. <3

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Update posted by Edwin Chen On Aug 27, 2019

Edwin has left us on 19 August 2019. He has fought the good fight and has gone to a better place. We will always remember his fighting spirit until the end. His thirst and hunger for life is admirable and inspirational, even to the doctors who knew him. I hope this encourages you to live on, no matter how tough the circumstances may be.

This crowdfunding was set up to give him hope for a transplant. All this while, he always knew a transplant is his best chance at life and always held on to the hope that one day he can have a transplant. We are sad that it didn’t happen. But we thank you for your contributions to keeping his hopes alive. We will now use the amount raised to pay off his medical bills. If there are any amount remaining, it will be given to his parents who are now both past 60years old. Edwin has always felt sad that he couldn’t lead a “normal” life to earn money and support his family hence we know that he would also like them not to worry too much about money matters in their old age. If there are any amount left, we will make a donation in the name of Edwin Chen.

We will be keeping this crowdfunding going for a while longer. Thank you for your love for Edwin.

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Update posted by Edwin Chen On Aug 14, 2019

Edwin was transferred to the new hospital on Tuesday evening. The journey there was difficult and when Edwin reached the hospital, the medical team found him to be hypotension and the need for oxygen increasing. The first night was a long night spent doing a lot of blood test, scans etc. They quickly put him on drip and he started using the oxygen mask the next morning. The icu team was called in, as well as the palliative team. So currently, it is impossible for Edwin to do a chemo and then transplant given his current medical status. However, he is fighting on. Even though many doctors are trying to prepare us for the worst scenario, we feel that Edwin can overcome this. His ultimate wish is still a transplant and to be a survivor of this disease.

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Update posted by Edwin Chen On Aug 11, 2019

Edwin is still warded, despite his Sister telling him, “it’s just two nights, we will go to hospital and get your ankle treated, find out what’s wrong and we will go back home.” It’s been almost 1.5 month in hospital. Doctors are still unsure what’s up with the swollen painful ankle. They say it’s unlikely to be infection now.. but why are there fluids randomly collecting in the ankle joint?

This 1.5 month, Edwin has been bed bound due to the pain in the ankle that doesn’t allow him to walk. He has lost much weight and his appetite isn’t good.

On 23 July, Tuesday, Doctors threw us all a bomb, telling us that Edwin isn’t responding to the current treatment (aza and venetoclax). His blast cells in the marrow has increased from 59% (in march’s hospitalisation when they told us it’s a relapse) to now 65%, despite trying venetoclax. They said they have no more alternative treatments left for Edwin. For patients in this situations, they usually have “a few weeks to three months” left. Edwin was devastated. He cried. We all cried. But he refused to believe this is it. So Edwin’s Sister has taken no-pay leave to seek second opinions and to share the caregiving role with Mother (who is elderly and can’t take too much stress too).

Edwin’s Sister has gone around to private haematologists and other Govt Hospitals. The only way is transplant but not all are willing to do as the risks involved are high. Edwin is not covered under private insurance and hence going to private settings would be almost impossible for us. Thankfully, the other Govt hospital offered a glimmer of hope for us. They have suggested a round of strong chemo and hopefully a successful transplant but of course there are many risks along the way. It’s a scary decision but Edwin will never say no to any chance of living. Hence, we have made the decision to do a transfer to the other hospital sometime next week...

The private haematologist have quoted us 200-300k for a transplant to be done. How much would a transplant in a Govt hospital cost?

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Update posted by Edwin Chen On Aug 11, 2019

Edwin went into the icu on Tuesday as his need for oxygen escalated and he felt that he couldn’t breathe. They did a broncoscopy in the ICU and the results showed that it were some viruses and they are treating Edwin for it now. They had also “washed” Edwin’s lungs so he can breathe better now... we are thankful the procedures went smoothly and he is safe.. he was transferred back to a normal ward yesterday. His left foot/ankle still hurts so bad and is still swollen. Doctors seemed clueless what is it after mri and other scans showed nothing. Any experts here care to share possible reasons?


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Update posted by Edwin Chen On Aug 11, 2019

Edwin is back in hospital, warded due to a severe leg pain and coughing up blood. The doctors just found out there’s bacteria in the blood. Awaiting more tests to confirm whether is it the lungs or the leg... hope they quickly determine and my brother can overcome this and go home soon

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Update posted by Edwin Chen On Aug 11, 2019

I would very much like to give an official update but I have been logged out of the account and I can’t remember the password and my brother is not in the best state of mind to talk to anyone. It’s been two months since he was discharged. The two months has been a period of routines for him and he tries his best to stick to routines and go for all the hospital appointments (2-3 times a week) although he often does not feel well in the mornings. He still gets pretty sick in the morning, fever and pain but he would feel better in the afternoon. More recently, he’s getting joint pains and he has the patches on him constantly to alleviate the pain. However the pain can get very intense in the early mornings and the family has been waking up to his screams and shoutings from 4am to 8am. He has also been coughing and it was getting worse and a recent ct scan finally revealed that there is infection in his lung. He is losing hope. And being a family that is predisposed to depression, his mental state is not ideal either. Yesterday I read an online forum or discussion thread regarding my brother’s crowdfunding and there was someone who said that he would not donate as he has seen my brother in the wards and he thinks there are others who deserve it more than him. I was angry - how much do you know about my brother, about my family, to have made that comment? If you didn’t know much, how about just keep your comments to yourself, rather than hurting my brother and us? Similarly, I keep my comments whenever I read about other people in difficult situations because we are not them, we don’t know how difficult it can be. This guy said he saw my brother in the wards.. is he a patient? Or a caregiver? Perhaps then he is going through tough times himself and was sort of venting - but please don’t be impulsive with your words: they can hurt. Words on the internet stay around for a long long time. More than raising funds, this crowdfunding raises hope for Edwin and the family. Yes, the money will go towards his future transplant if possible; but in the meantime, every contributor (no matter what’s the amount) means that Edwin is not alone. Please help Edwin to know that he isn’t alone. Thank you, Edwin’s Sister

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Update posted by Edwin Chen On Apr 29, 2019

Edwin has been discharged one week ago, after 51 days in the hospital. Although this time there was no ICU stay (thankfully!), the doctors did comment that his condition is worse off than last year. There was a scare on a particular Friday - when the ICU team was called in to be on stand by. Thankfully, he pulled through that weekend and did not need an admission to ICU.

Since his discharge, he’s been having fever every morning. It would start after midnight and his fever would go away around noon the next day. The fever started at 37ish in the first few days and climbed to the highest of 39.2 about two days ago. He’s been going for outpatient clinics for follow ups and being closely monitored.

Today, his blast cell is up to 13%. He is currently taking oral chemo (venetoclax) daily for the past week and it will take about two months to see if he would respond well to it. Please keep him in your prayers.

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Update posted by Edwin Chen On Apr 27, 2019

Other than paying for the recent long hospitalization, money raised in this crowdfunding will go towards Edwin’s bone marrow transplant in the future.

At present, the doctors at his hospital has told him that they are not inclined for him to do a transplant as the risks outweigh the benefits. However, a transplant is the only hope and chance Edwin has to lead a normal life. At the moment, he is on palliative chemo treatment and nobody knows how long more he has...

Although he recognised that there are many risks, Edwin would still want to seize any small possibilities of living. He wants a shot at life, no matter how slim the chance may be. That is how much he wants to live! Hence, he is considering to get a second opinion locally, as well as overseas. However, a transplant itself with a overseas donor could cost up to $100k, not considering other expenses.

We appreciate any help you can offer, no matter how small, as every donation is already giving Edwin hope and comfort that someone out there cares and is rooting for him. Thank you so much.

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Update posted by Edwin Chen On Apr 22, 2019

As Edwin’s family, we want to continue to fight together with him and to give him hope to carry on. Through this campaign, it can ease some of our financial burden so that we can turn our attention more to Edwin himself and to spend more time with him. Also, your support will communicate to Edwin that there are still so many people who are cheering him on and are not giving up on him so he should not give up on himself too.

Thank you for cheering Edwin on.

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Responding to team member’s appeal to help Edwin’s family cope with the medical costs.

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