Sarah’s MS Journey for HSCT treatment
Fundraising campaign by
Sarah Ismail
-
AU$4,270.00raised of AU$68,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Last year I was diagnosed with MS!
The emotional and physical toll this debilitating condition has had on me has been hard for not only me but all of my family and friends to watch!
I live with 20 something symptoms per day! I call this the invisible disease! You would never know that I have MS, from the otuside I look like a young, vibrant and healthy 29yr old, on the inside my immune system is attacking my nervous system, causing multiple symptoms and damage to my brain and nervous system!
My husband Chris and I have researched multiple articles on treatments and diets to help with the symptoms of MS! Chris came across a treatment in Russia that is having amazing results in MS patients!
The treatment is called HSCT!
Basically what they do is stem cell treatment to reset the immune system of the MS patient! I will lose all of my hair and be extremely unwell for a number of months but at the end of it all it will all be worth it! The treatment essentially stops MS in its tracks and my I will be able to live a normal life without the symptoms MS carries!
Here is where we need your help!
The HSCT treatment is not funded and costs 50,000 USD! I have been accepted into the program and the date for my treatment is the 25th of Feb 2019! We are currently in the middle of raising the much needed funds for Russia!
We are in a race against time! The more time it takes to get the HSCT the more damage my body will incur! Australia does not offer this treatment until a last resort, when all of the treatments they do offer stop working! This may be to late, the damage will already be done and some of that damage maybe the loss of my legs as I could very well end up in a wheelchair! The treatments on offer here in Australia have horrible side affects and are not in any way as effective as the HSCT availble in Russia!
Please help me by spreading this story far and wide! Not only to support myself through this journey but to help all the other women, men and children that suffer from MS in Australia know that there is help out there and another form of treatment to stop MS in its tracks!
So please help me STOP MS IN ITS TRACKS by sharing our story!
Organizer
- Sarah Ismail
- Campaign Owner
- AU
Im 29 and been diagnosed with ms for 1.5 years.
Im 29 and been diagnosed with ms for 1.5 years.
Donors
- Anonymous
- Donated on Apr 07, 2019
- Anonymous
- Donated on Apr 05, 2019
- Anonymous
- Donated on Apr 03, 2019
Leaving russia to return home to australia.
Update posted by Sarah Ismail at 07:30 amSoo I have finished up 2 days early!! I had my ritixamab infusion yesterday over 5hrs and it went really well!! Just tired today. Rituximab attacks B cells. The Cyclophosphamide that is given during the beginning of treatment concentrates on attacking T cells. Dr. F. described it to me as. . . . .
Isolation nearlly done.
Update posted by Sarah Ismail at 05:52 amDay 7 in isolation, I honestly love isolation and don't want to leave it is so peaceful!!They have to wipe down food that come into my room even tne boxes of things and only single use packets are ok.I got to see my husband today for like 2 min on
My neck line moved!! Ahhhhh and a reaction.
Update posted by Sarah Ismail at 08:25 amHello everyone,This morning there was a bit of a malfunction with my neckline catheter, they started my usual IV steroid and electrolyte infusion through the neckline and straight away I couldn't breath, couldn't stop coughing blood pressure dropped and I was trying not to faint. They stopped the infusion straight. . . . .
Ending chemo! Feeling yuck now.
Update posted by Sarah Ismail at 09:37 amChemo is finally finished.. YAYRest day today.The last 2 day have been hard for sarah as her leukocytes are dropping from the chemo. She has constantlly felt so sick and have been vomiting. They give her meds to stop the vomiting, which helps but, but she cant keep any food
Ending chemo! Feeling yuck now.
Update posted by Sarah Ismail at 09:36 amChemo is finally finished.. YAYRest day today.The last 2 day have been hard for sarah as her leukocytes are dropping from the chemo. She has constantlly felt so sick and have been vomiting. They give her meds to stop the vomiting, which helps but, but she cant keep any food
Stem cell extraction complete.
Update posted by Sarah Ismail at 03:10 pmhave now completed my stem cell extraction after stimulation, aiming for 2 million per kg after getting them after 2 days, sone people take 1 day and up to 3 days.. been absolutlly perfect no complications the tinest bone pain for like 2 minutes slightly tied, but nothing to worried
First week of treatment completed.
Update posted by Sarah Ismail at 11:49 amThe first week of testing is completed, the testing has been easier than I thought, I'm onto the start of the treatment, I've had 500mg of steroids iv every day. Which is for protecting my body when I get chemo.I've had my head shaved, and a neck line put in. . . . .
Day 1: unpacking in my room
Update posted by Sarah Ismail at 08:41 amYay finally arrived in russia. Unpacking in my room for the next month met with Dr federenko and staff. Finishing the last of my testing.I was nervous at the start about the treatment. But Dr federenko assured me that everything will be fine and that I will be taken great
Visa's arrived! Eeekkkkk
Update posted by Sarah Ismail at 09:54 amomg, it's starting to sink in.My mum my self and my husband's visas have arrived, I'm starting to get nervous as it's not far at all. I'm not looking forward to the flight we fly from Melbourne Australia land in Abi Dhabi then across to Moscow get picked up at. . . . .
OMG 1 WEEK TO GO! XX
Update posted by Sarah Ismail at 01:05 amOMG 1 WEEK TO GO! XXThank you to everyone who has contributed and helped in any way, To help me get to RUSSIA to improve my life it means so much.My countdown timer for HSCT in RUSSIA
Donors & Comments
- Anonymous
- Donated on Apr 07, 2019
- Anonymous
- Donated on Apr 05, 2019
- Anonymous
- Donated on Apr 03, 2019
- Anonymous
- Donated on Mar 28, 2019
- Anonymous
- Donated on Mar 22, 2019
- Anonymous
- Donated on Mar 17, 2019
- Anonymous
- Donated on Mar 11, 2019
- Anonymous
- Donated on Mar 03, 2019
- Anonymous
- Donated on Mar 01, 2019
- Anonymous
- Donated on Feb 22, 2019
Thinking of you over the next few weeks. Hope it all goes as well as possible! xx
Followers
Support Campaigns
Create a support campaign in seconds!
Support campaigns allow you to get your own fundraising page dedicated to 'Sarah’s MS Journey for HSCT treatment'
You'll have your own unique link that you can share, and all funds raised will go directly to 'Sarah’s MS Journey for HSCT treatment'. It's the ultimate way to show your support!
Create support campaign