Sarah’s MS Journey for HSCT treatment

  • AU$4,270.00
    raised of AU$68,000.00 goal goal
6% Funded
44 Donors
Raised offline: AU$62,600.00
Total: AU$66,870.00

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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Last year I was diagnosed with MS!

The emotional and physical toll this debilitating condition has had on me has been hard for not only me but all of my family and friends to watch!

I live with 20 something symptoms per day! I call this the invisible disease! You would never know that I have MS, from the otuside I look like a young, vibrant and healthy 29yr old, on the inside my immune system is attacking my nervous system, causing multiple symptoms and damage to my brain and nervous system!

My husband Chris and I have researched multiple articles on treatments and diets to help with the symptoms of MS! Chris came across a treatment in Russia that is having amazing results in MS patients!

The treatment is called HSCT!

Basically what they do is stem cell treatment to reset the immune system of the MS patient! I will lose all of my hair and be extremely unwell for a number of months but at the end of it all it will all be worth it! The treatment essentially stops MS in its tracks and my I will be able to live a normal life without the symptoms MS carries!

Here is where we need your help!

The HSCT treatment is not funded and costs 50,000 USD! I have been accepted into the program and the date for my treatment is the 25th of Feb 2019! We are currently in the middle of raising the much needed funds for Russia!

We are in a race against time! The more time it takes to get the HSCT the more damage my body will incur! Australia does not offer this treatment until a last resort, when all of the treatments they do offer stop working! This may be to late, the damage will already be done and some of that damage maybe the loss of my legs as I could very well end up in a wheelchair! The treatments on offer here in Australia have horrible side affects and are not in any way as effective as the HSCT availble in Russia!

Please help me by spreading this story far and wide! Not only to support myself through this journey but to help all the other women, men and children that suffer from MS in Australia know that there is help out there and another form of treatment to stop MS in its tracks!

So please help me STOP MS IN ITS TRACKS by sharing our story!

Organizer

  • Sarah Ismail
  •  
  • Campaign Owner
  •  
  • AU

Im 29 and been diagnosed with ms for 1.5 years.

Im 29 and been diagnosed with ms for 1.5 years.

Donors

  • Anonymous
  • Donated on Apr 07, 2019
Amount Hidden
  • Anonymous
  • Donated on Apr 05, 2019
Amount Hidden
  • Anonymous
  • Donated on Apr 03, 2019
Amount Hidden
Apr 07

Leaving russia to return home to australia.

Update posted by Sarah Ismail at 07:30 am

Soo I have finished up 2 days early!! I had my ritixamab infusion yesterday over 5hrs and it went really well!! Just tired today. Rituximab attacks B cells. The Cyclophosphamide that is given during the beginning of treatment concentrates on attacking T cells. Dr. F. described it to me as. . . . .

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0
Mar 26

Isolation nearlly done.

Update posted by Sarah Ismail at 05:52 am

Day 7 in isolation, I honestly love isolation and don't want to leave it is so peaceful!!They have to wipe down food that come into my room even tne boxes of things and only single use packets are ok.I got to see my husband today for like 2 min on

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0
Mar 17

My neck line moved!! Ahhhhh and a reaction.

Update posted by Sarah Ismail at 08:25 am

Hello everyone,This morning there was a bit of a malfunction with my neckline catheter, they started my usual IV steroid and electrolyte infusion through the neckline and straight away I couldn't breath, couldn't stop coughing blood pressure dropped and I was trying not to faint. They stopped the infusion straight. . . . .

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0
Mar 12

Ending chemo! Feeling yuck now.

Update posted by Sarah Ismail at 09:37 am

Chemo is finally finished.. YAYRest day today.The last 2 day have been hard for sarah as her leukocytes are dropping from the chemo. She has constantlly felt so sick and have been vomiting. They give her meds to stop the vomiting, which helps but, but she cant keep any food

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Mar 12

Ending chemo! Feeling yuck now.

Update posted by Sarah Ismail at 09:36 am

Chemo is finally finished.. YAYRest day today.The last 2 day have been hard for sarah as her leukocytes are dropping from the chemo. She has constantlly felt so sick and have been vomiting. They give her meds to stop the vomiting, which helps but, but she cant keep any food

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Mar 11

Stem cell extraction complete.

Update posted by Sarah Ismail at 03:10 pm

have now completed my stem cell extraction after stimulation, aiming for 2 million per kg after getting them after 2 days, sone people take 1 day and up to 3 days.. been absolutlly perfect no complications the tinest bone pain for like 2 minutes slightly tied, but nothing to worried

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Mar 05

First week of treatment completed.

Update posted by Sarah Ismail at 11:49 am

The first week of testing is completed, the testing has been easier than I thought, I'm onto the start of the treatment, I've had 500mg of steroids iv every day. Which is for protecting my body when I get chemo.I've had my head shaved, and a neck line put in. . . . .

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Feb 27

Day 1: unpacking in my room

Update posted by Sarah Ismail at 08:41 am

Yay finally arrived in russia. Unpacking in my room for the next month met with Dr federenko and staff. Finishing the last of my testing.I was nervous at the start about the treatment. But Dr federenko assured me that everything will be fine and that I will be taken great

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0
Feb 21

Visa's arrived! Eeekkkkk

Update posted by Sarah Ismail at 09:54 am

omg, it's starting to sink in.My mum my self and my husband's visas have arrived, I'm starting to get nervous as it's not far at all. I'm not looking forward to the flight we fly from Melbourne Australia land in Abi Dhabi then across to Moscow get picked up at. . . . .

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Feb 17

OMG 1 WEEK TO GO! XX

Update posted by Sarah Ismail at 01:05 am

OMG 1 WEEK TO GO! XXThank you to everyone who has contributed and helped in any way, To help me get to RUSSIA to improve my life it means so much.My countdown timer for HSCT in RUSSIA

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0
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Donors & Comments

44 donors
  • Anonymous
  • Donated on Apr 07, 2019
Amount Hidden
  • Anonymous
  • Donated on Apr 05, 2019
Amount Hidden
  • Anonymous
  • Donated on Apr 03, 2019
Amount Hidden
  • Anonymous
  • Donated on Mar 28, 2019
Amount Hidden
  • Anonymous
  • Donated on Mar 22, 2019
Amount Hidden
  • Anonymous
  • Donated on Mar 17, 2019
Amount Hidden
  • Anonymous
  • Donated on Mar 11, 2019
Amount Hidden
  • Anonymous
  • Donated on Mar 03, 2019
Amount Hidden
  • Anonymous
  • Donated on Mar 01, 2019
Amount Hidden
  • Anonymous
  • Donated on Feb 22, 2019
  • Thinking of you over the next few weeks. Hope it all goes as well as possible! xx

AU$50.00
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Followers

8 followers
Ellen Stubbs
Shoikat Farabi
Elden Dave Cuesta
Lisa Wendt
Matt Chiodo
Tonia Shortt
Jayne Lauder
Tanya Kennedy

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AU$4,270.00
raised of AU$68,000.00 goal
6% Funded
44 Donors
Raised offline: AU$62,600.00
Total: AU$66,870.00

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities