Ryan’s Physical Rehab (EDS)
Fundraising campaign by
Louise Smith
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£4,387.00raised of £25,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Ryan has Ehlers Danlos Syndrome and has daily struggles with his body, including issues with his heart rate, bladder function and bowel function. He has hypermobile joints and his muscles are weak and getting weaker, especially in his hips and back. Ryan is already on a cardiology care plan to ensure his heart functions well and he has regular check ups but he is now in need of physical rehabilitation to strengthen his body so he will still be able to walk in the future and his organs can function in the future. He is starting treatment on October 2nd at Great Ormond Street Hospital for children. This is highly specialised treatment with amazing results in other children facing similar challenges. The NHS waiting list is too long and our Private Insurance don't fund this treatment so this needs to be self funded. The money raised will pay for treatment and aids and associated costs needed to keep Ryan mobile and functioning in the future. Inactivity has a major impact on how his heart and other organs function. Starting Treatment whilst he is young will be extremely beneficial. Most children start to deteriorate between the ages of 9 and 11 and Ryan is 9 now. Thank you for your support. Ryan is a caring, amazing child who deserves to have a pain free as possible childhood and a wonderful adulthood. Thank you xx
Organizer
- Louise Smith
- Camberley, UK
Donors
- Anonymous
- Donated on Sep 30, 2017
- Anonymous
- Donated on Sep 29, 2017
- Anonymous
- Donated on Sep 23, 2017
October 2nd
Update posted by Louise Smith at 08:25 amDate locked in, treatment starting in 5 weeks. Please keep caring and sharing 💙💜💚
Thank you for all the ongoing support and for sharing with as many people as possible x 💙💚💜💝
Update posted by Louise Smith at 06:00 amPlease keep sharing and caring 😀
Donors & Comments
- Anonymous
- Donated on Sep 30, 2017
- Anonymous
- Donated on Sep 29, 2017
- Anonymous
- Donated on Sep 23, 2017
- Anonymous
- Donated on Sep 22, 2017
- Anonymous
- Donated on Sep 17, 2017
- Anonymous
- Donated on Sep 14, 2017
- Anonymous
- Donated on Sep 09, 2017
- Anonymous
- Donated on Sep 05, 2017
- Anonymous
- Donated on Sep 02, 2017
- Anonymous
- Donated on Aug 31, 2017