Run, Takami, run!

Hello everyone.

This is Takami. He's a happy-go-lucky little boy that loves to doodle and all things to do with cars. Recently he has shown a great interest in music, especially the piano.

Though unlike most little boys his age, he has Spinal Muscular Atrophy type 2 and at 18 months we were told by his doctors even with the best treatment he may never walk (for more information about his disease, see here https://smanewstoday.com/spinal-muscular-atrophy-t...). However, we believe in medical science and that with promising R&D on SMA type 2, one day Takami will be able to walk even if supported. Of course, even with crutches or braces, his leg bones and muscles must be strong enough to support the weight of his body. So to give him any chance we need to maintain his physical condition with Physical Therapy. Not to mention Occupational and Speech Therapy as well.

Last year, I have received the kindness of many people and were able to purchase braces for Takami. His legs and feet has improved so much since then. However, they will need to be resized, if not remade altogether, alongside with his wheelchairs.

In July 2017, an FDA approved drug called SPINRAZA has been approved in Japan (for more information, please visit https://www.spinraza.com) and Takami will start his treatment in March of 2018. Needless to say, the cost for a single injection is high even with insurance coverage; not to mention the costs of hospitalisation and transport. There will be at least a total of 6 injections until he shows any improvement.

As you can imagine, taking Takami to his various appointments, hospitalizations, and his need of constant supervision (he can't feed or clean for himself, he is prone to choke on food and drinks) means that I can only work part-time. On my limited means these bills of treatments and medical equipments are insurmountable. So even if I took out personal loans I wouldn't have the means to pay it back.

Friends suggested I come here, share with you my situation but I have resisted the idea of asking help from others. I don't want to burden you with my troubles but when it comes to your own child, you have to do whatever it takes to give them a decent shot. I need all the help I can get to keep his treatment ongoing, and one day, Takami will run!

Any amount of help counts, and I thank you from the bottom of my heart for your support. Thank you for helping Takami get a better chance in life.

With my endless gratitude for you,

Aiko Maeda