RILEY the fighter (Edwards syndrome – Trisomy 18)

little girl from our church, Riley. Born with Trisomy18 (Edwards Syndrome). 3 years of age.

We are trying to collect as many as we can for her support for daily needs of oxygen, food and medicine she requires.

Every amount donated are a big help for Riley and her family. I dont even know if this amount I put is enough to sustain all her needs, but with God nothing is impossible.

She gives so much hope to all of us, to those who believe that life is worth fighting for and never give up.

Medicines: nexium 10mg., Raniditine 175mg, Ventolin, Pulmicort, Atrovent, Normal saline.

Syringes : 1ml , 5ml, 10ml, acromed 60ml

Tubes: suction catheter no. 6 and 8, Feeding tube or ngt tube no.8, Syramed line its like a tube extension.

Tegaderm film

Oxygen 24/7 Supply.

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a letter from Riley's Parents:

Good day. I hope I could take a minute of your time to read my family's story-

We are a humble family from the Philippines trying our luck here in Middle East. My name is Anthony Jasper Sales together with my wife Analiza and my eldest son Ran, are humbly asking for help in this trying times of our lives.

In October of 2014 we are gifted with a beautiful baby daughter named Samirah Allegra or Riley as we call her. She was all we prayed and wanted for except for one thing; She was born with Edward’s Syndrome or Trisomy 18 which what the doctors say means in common terms “incompatible with life”. Right after she was diagnosed the doctors told us that she only has days to live and we should make the most of it. As parents we were shocked and devastated. But we took a stand and told ourselves that we will fight for and with her and do everything that we can for her recovery mainly because we believe that miracles do happen and that God has a better plan for her and us than giving up on her.

And so it started, the seemingly unending rough patch of life that we chose. Before Riley was born Dubai was becoming a little uneasy with their economy and I was unemployed for 8 months and Riley was in the Neo-natal I.C.U. for almost 8 months. We blindly took loans in the bank, asked for help from charities, friends and families and everyone and everything that we could think of. Unfortunately it is not enough. Besides having trouble with the banks because I do not have the capacity to pay them up anymore Riley was in and out of the N.I.C.U up to March of this year and has accumulated an insurmountable amount of almost 250,000 US if my math skills serves me right. And because of this and the bank loans none of us can leave the country as well as Riley not having to have a legal name because the hospital that she was born in will not release any documents until I pay up the remaining balance of her hospital bills.

We are not asking for all of our debts be paid but in all honestly, all we are asking is a little help from you. My wife lost her job as well for almost about a year now and I am the only breadwinner in my family right now. I don’t think she can apply for a new job mainly because we cannot afford a proper nurse or caregiver to take care of Riley while we both are working. Riley needs constant oxygen as well due to the fact that she has multiple holes in her heart(VSD, ASD) and is adding up to the bills. Her milk is special and can only be bought inside the hospital and with all these, the reason we are humbly asking for any help that you can give.

I know God has a reason for this. And I know God has a better plan for my family. We are reaching out to your heart of hearts and as you decide to help our struggling family, may God bless you more than you deserve and grant all the desires of your heart. Thank you and God bless us everyone. Sorry to have disturbed your precious time. Im just trying my luck and hope that you could be of help to me and my family. I have heard about your kind, generous and golden heart. God bless you more than you deserve.

And I am currently not working because of passport and visa issue because I need to renew my passport but it is in the Dubai Courts due to the loans I took because of the baby's hospitalization since she was born and we dont have money to pay penalties. If you can help us in anyway we would appreciate it greatly. Thank you and god bless.

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Now, who am I to complain I am tired? I hope, pray and wish I could help them.

you can keep intouch with us about her current situation and everything you need to know.

God bless us all