Rezmives Lisa-Maria

Fundraising campaign by Rezmives Lisa
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La vârsta de 3 luni, după primul vaccin, Lisa a facut o convulsie care a durat timp de peste 25 de minute. Dupa acea convulsie, Lisa a ramas practic ca o leguma.

La 4 ani, Lisa nu umbla, nu vorbeste, nu sta in fund, nu reactioneaza la stimuli. Ea are nevoie de aceasta donatie pentru Secventiere NGS - panel de gene responsabile de leucodistrofii și leucoencefalopatii ( panel de 74 de gene disponibil la Blueprints genetics , Finlanda) sau secventierea întregului exom WES


At the age of 3 months after the first vaccine, Lisa had a convulsion lasting over 25 minutes. After that convulsion, Lisa remained practically like a vegetable.
At 4, Lisa does not walk, speaks, does not stand, does not react to stimuli. She needs this donation for the NGS Sequencing - gene panel responsible for leukodystrophy and leukoencephalopathy (a panel of 74 genes available from Blueprints genetics, Finland) or the sequencing of the entire WES exom

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recovery

recovery

Organizer

La 4 ani, Lisa nu umbla, nu vorbeste, nu sta in fund, nu reactioneaza la stimuli.

La 4 ani, Lisa nu umbla, nu vorbeste, nu sta in fund, nu reactioneaza la stimuli.

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  • Rezmives Lisa
  • Posted On Jun 04, 2018
  • La vârsta de 3 luni, după primul vaccin, Lisa a facut o convulsie care a durat timp de peste 25 de minute. Dupa acea convulsie, Lisa a ramas practic ca o leguma. La 4 ani, Lisa nu umbla, nu vorbeste, nu sta in fund, nu reactioneaza la stimuli. Am fost internata cu fetita mea la Spitalul Clinic de Neurologie Pediatrica din Cluj Napoca, unde au descoperit ca Lisa sa nascut cu creierul mic, nedezvoltat, iar vaccinul ia afectat creierul, lasand-o cu probleme grave de dezvoltare neuro-motorie. In data de 30.05.2013, Lisei i sa recoltat sânge pentru o analiza specială, fiind suspecta de boala Pompe si fiind trimisă de la Clinica de Neurologie Pediatrica din Cluj Napoca la Synevo, rezultatele au iesit negative. Doctorita care sa ocupat de fetita mea, mi-a spus ca ar trebui facute mai multe investigati, pentru a afla de ce boala suferă Lisa, doar ca ar trebui sa incerc la alți medici specialisti, pentru ca dansa este lipsita de posibilitati, spitalul neavand fonduri pentru astfel de investigatii. Doamna doctor mi-a recomandat sa merg cu Lisa in centre specializate pentru boli neuro-metabolice. Doctorita m-a atentionat ca Lisa are nevoie de investigatii complexe, inclusiv analize specifice mutatiilor genetice, costurile putand ajunge la mii de euro. Sunt divortata de 4 ani si am 4 copii pe care ii cresc singura locuind intru-n apartament inchiriat iar Lisa este cea mai mica si singura care sa nascut cu probleme. Fac kinetoterapie cu Lisa la Asociatia Suntem Părinți Noua ne Pasă, din orasul Jibou, jud. Sălaj si in Zalău, la Centrul de recuperare,, Acasa". La centrul de recuperare m-au invatat cum sa fac terapie cu Lisa, masaj si kinetoterapie acasa, dar cu toate acestea, in 4ani de zile, nu se vad rezultate. Apelez la comunitate, la oameni, fiindca este tot ce pot face pentru fetita mea si cred ca sunt persoane cu suflet care pot sa ma ajute sa aflu cu ce boala se confruntă Lisa Maria. Sunt cuvintele unei mame care nu se poate bucura de un copil de o frumusete aparte, precum Lisa. Cuvintele unei mame lipsita de posibilitati financiare, de sprijin si de ajutor. Noi credem ca Lisa merita toate eforturile noastre, credem ca existe toate sansele sa fie un copil normal, sa se bucure de viata, de copilarie, sa zburde, sa rada si sa se joace. Ceea ce pentru noi poate insemna putin, pentru Liza inseamna enorm si o sansa la viata si la viitor. Doantiile se pot face in contul RO60CECEC001946319546911, deschis la CEC Bank pe numele Amalia Rincan, mama Lisei. Echipa Imparte.ro, Lisa si Amalia, va multumim turor pentru implicare si promitem sa va tinem la curent cu evolutia situatiei. Pentru informatii suplimentare, va rugam sa

  • Rezmives Lisa
  • Posted On Jun 04, 2018
  • At the age of 3 months after the first vaccine, Lisa had a convulsion lasting over 25 minutes. After that convulsion, Lisa remained practically like a vegetable. At 4, Lisa does not walk, speaks, does not stand, does not react to stimuli. I was admitted with my daughter at the Clinical Clinic of Pediatric Neurology in Cluj Napoca, where they discovered that Lisa was born with little brain, undeveloped, and the vaccine affected her brain, leaving her with serious neuro-motor development problems. On 30.05.2013, Lisa was bled for a special analysis, being suspected of Pompe disease and being sent from the Pediatric Neurology Clinic in Cluj Napoca to Synevo, the results were negative. The doctor who dealt with my daughter told me that there should be more investigations to find out why Lisa suffers the disease, but that I should try other specialist doctors because the dance is devoid of possibilities, the hospital having no funds for such investigations. My doctor recommended me to go with Lisa in specialized centers for neuro-metabolic diseases. The doctor warned me that Lisa needs complex investigations, including gene-mutation analyzes, costing up to thousands of euros. I am divorced for 4 years and I have 4 children that I grow alone living in a rented apartment and Lisa is the youngest and only one who was born with problems. I do kinesiotherapy with Lisa at the Association We Are New Parents We Pash, from Jibou, Salaj County and Zalau, at the Recovery Center "Home." At the Recovery Center I have been taught how to do Lisa, massage and kinetotherapy at home, but nevertheless, in four days, no results can be seen. I appeal to the community, to the people, because it is all they can do for my little girl and I think they are soulful people who can help me to find out what the disease Lisa Maria is experiencing. They are the words of a mother who can not enjoy a child of special beauty, like Lisa. The words of a mother lacking financial, support and help. We believe that Lisa deserves all our efforts, we believe there are all chances to be a normal child, to enjoy life, to childhood, to flinch, to laugh and to play. What can mean for us a little, for Liza means enormous and a chance for life and the future. Payments can be made to account RO60CECEC001946319546911, opened at CEC Bank on behalf of Amalia Rincan, Lisa’s mother. The Imparte.ro team, Lisa and Amalia, thank you for your involvement and we promise to keep you up to date on the situation. For additional information, please

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