Really Need Medication and a way to Survive…please read my story

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First and foremost its embarrassing to even have to do this....I literally have no Choice.....A year ago I was officially diagnosed with a Rare Neurological disease that is a Type of Guillain–Barré syndrome called CIDP or Chronic inflammatory demyelinating polyneuropathy...It destroys the nerves in your body basically crippling you from the inside out..( Feel free to google and Wikipedia it) I have zero feelings below the knees in both legs and basically have lost most function in my left hand...I have good days and bad but This is the cards ive been dealt and there is no cure sadly for my particular strain of CIDP...There is however medical treatment that is available which I will explain here in a moment...I have intense Charlie Horse like spasms and brain zaps on a daily basic which has sadly rendered me to be disabled...Ive been fighting Social security for many months now and now have the congress of the united states involved and on my side...In April of this year (2019) My Neurologist send me to the hospital to to intensive IVIG therapy...After 3 days I was taken to do an MRI and a Spinal Tap procedure where the techs didnt communicate and woke up in Intensive Care on a ventilator because 2 techs didnt communicate and overdosed me...Ive had residual issues from that but as a Christian person I chalked it up to they screwed up and you have to forgive even people who literally almost kill you. ( really not trying to be funny as it was aweful...) I am now starting a new 9 month regiment of an IVIG like drug called Hizentra which requires many many Injectionsand vials of plasma and is also made from plasma of thousands of donors to try and slow my immune system down from attacking itself...Sadly Insurance doesn't pay this in full and its an INCREDIBLY expensive treatment...Since 2015 when this disease initially started its gotten really bad and I did Everything and anything I could to survive...sadly ive maxed out every resource I had and am ever so greatfull to a cousin as I call him for taking me in and keeping a roof over my head...I am greatful for any help as even my out of pocket expenses are going to be enourmous...Again im not proud to be in this situation and im immensly grateful for the people that have helped me with basic necessities etc....Many of you may be thinking wow how shameful to have to post a fundraiser ....why isnt his family helping? They have...but I cannot continually ask nor put them in a situation to make their lives stressful....bottom line I get it...nobody owes me anything in life,,,i get it I really do....But I am such at a bad mental and physical place right now that I have to not worry about people judging me for having this serious disease...Anyway If you can help please help if you cant Its ok please pray for me....Ive been so down and out lately Only thru the Grace of god ive made it through this so far and no not from the pain nor disease but the toll of all this thats caused me immense depression and at times a lack of wanting to even go on...Again Thank You God bless you and Happy Holidays to All my family and friends

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  • Kurt Tarwacki
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US$0.00
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