- Welcome to my fundraising page. Hello, my name is Marianna, I am Autistic on the severe end of the Autistic Spectrum, with Speech and Language delays aswell as difficulties socializing with other children, and being visually impaired with an in turned left foot. this is why I have needed help from my mummy and daddy to put this page together.
please visit mariannas face book page so you can follow her journey. Autism fund raising for Marianna who is autistic.
I was born on the 2nd December 2011, and ever since then have always felt more comfortable and safe with a dummy and a she she blanket for comfort and reassurance, as I get very insecure and scared especially in the dark. So I have a special paw patrol night light to keep the monsters away aswell as my favorite toys that travel everywhere with me, whether in the car to school, or to my gran and grandad's, or to sleep at night. Without my toys I will have uncontrollable tantrums till my mummy and daddy find them and bring them to me, no matter how much my parents console or comfort me, or indeed love me, stability is very important to me and my toys provide this.
Due to my condition I am very close to my family members, and find it very difficult to make new friends even at school. This is all part and parcel of my condition and due to my Educational delay, and delays in speech and socializing. Other children of my age or older tend to make fun of me or avoid me preferring to make other friends which I find upsetting and emotionally hurtful. My parents have experienced judgement and criticizing stares and comments about my destructive and uncontrollable behavior in shops, parks, at school, and in town/city centers. Often being personally blamed for not controlling or disciplining me for my bad behavior when in fact it is due to my severe case of Autism, which has been diagnosed by a children's pediatrician that I have to visit on a regular basis to monitor my development and to allow me to get a "Statement of Special Educational Needs" for my school to get the necessary funding and teacher assistance that I require at school to attempt to keep up with the other children in my class, but have come to accept that I'm always falling behind because I find it difficult to concentrate and remember simple words and numbers. My parents say that I'm special and gifted in other ways.
When I was very little, load noises would intrigue and make me curious, now the same noises only create anxiety and distress, such things as vacuum cleaners, carpet washers, loud tevelisions,music and Lorries that drive past my home which is on a busy main road with lots of traffic. However if I was unable to fall asleep my daddy would take me out for a short drive in his car and that would usually get me off to sleep in no time. This unfortunately my daddy can not do anymore has his car is too old and too expensive for him to repair.
Up to the age of 1, there were signs of delay in my Speech and Fine Motor Skills aswell has being born with a in-turned left foot which made it difficult to walk and often appeared as if I was going to fall over when walking or running and creating a wide gait. Even thought I have adapted to this I have been unable to grow out of baby talk and babbling, going back to saying things like "goo goo" or "ga ga" when I'm actually 5 years old.
I was taken to a Pediatrician,Optician/Eye unit and an Occupational therapist by my mummy and daddy from an early age and have had my development closely monitored. It has been observed that my developmental milestones have never been met across the board in any area of Education or Personal Development. My mummy and daddy asked for my primary school to request a "Statement of Special Education Needs" and this is in the process of being put into place in the next 2 or 3 weeks to suit my specific needs and requirements at my school.
Being an Autistic child on the more severe end of the Autistic Spectrum proves difficult for both myself and my mummy and daddy, has my mummy suffers from mental illnesses also, which are Borderline Personality Disorder, Anxiety, Obsessive compulsive disorder. My daddy has had to give up his job which he enjoyed in a warehouse to look after me and my mummy. This creates a lot of emotional stress on both my parents, not to mention the financial hardship.
Even though my communication skills have slightly improved over the years, I often prefer to point or scream till I get what I want or use jargon or baby babble if that fails then as a last resort I will throw my toys at a wall or across the room, until my mummy and daddy understand what I want. This involves a lot of patients and understanding, which is why both mummy and daddy completed self teach courses on Autism awareness and Learning Disabilities, to help them understand my condition better, and my needs. Often avoiding me getting frustrated,upset or angry, which usually can lead to behavior that would be unimaginable in any other household.
I am just getting to grips with toilet training, with the occasional accident, but tend to wear a nappy at night or when travelling has I usually have accidents at night or while on public transport. I rarely have a dry morning and still need assistance with going to the toilet and wiping afterwards.
I find it hard to make new friends at school often preferring my mummy and daddy to stay a while until I settle in class. I only have a few friends due to my lack of communication and my withdrawn personality and the inability to play or do things with the other children often standing in the corner of the room and just observing has they play and learn.
due to my lack of friends I tend to withdraw into imaginary play and children's t.v. Programmes especially Mr. Tumble, Doc Mcstuffin and Curious George who I tend to imitate has he does not speak but makes monkey sounds.
Although I enjoy playing at home, since my daddy's car became to old to repair I have been restricted in the activities that I am able to do with other children, like going to the local ball pit, going to class mates birthday parties, going to the beach and site seeing. Aswell has having to go through dramatic and stressful school runs on buses every morning usually meaning I get to school late and out of sorts and my parents receiving criticizing comments from other passengers, who do not understand my condition. This upsets both my parents and me.
Therefore I would like to fund raise some money to put towards a new car for my parents so that they can drive me to school in the morning, visit nice places near home, take me shopping at the local supermarket and visiting my grandparents who live 92 miles away and I have not seen in over a year. And the visits to the medical experts that I dread and stress over without worrying the car will break down on the way has my daddy's last car always did.
Thank you for taking the time to read my story and please only give what you can afford in these difficult times for all of us. Many hugs and thanks to all my new friends who have taken the time to read my page. Marianna xx