Our little fighter Jace needs your help

Update posted by Ma. Catherine Perez On Jul 04, 2016

For the past months since the last update, Jace has been in and out of the hospital for blood transfusion.

It used to be a month or so interval. But since his bleeding has increased, his trips to the hospital also became more frequent. And 'frequent' means every two weeks.

He also complains how his tummy hurts each time he has to poo. And he'd always want his mommy to hold him.

He loves his books and loves to color. He can already recognize most of the colors. He'd always bring them during hospital trips so he can still do what he loves while confined.

His doctors advised that he undergo colonoscopy again. In the hopes of finally finding the cause of his bleeding. We still don't know what will follow after that.

Right now he is at UST Hospital where he will take all those tests again. I can't imagine how brave this little boy is. I am scared of needles myself. But this little boy, our Jace, never fails to amaze us. He cries, of course. I would too if I was in his place. But Jace remains a happy, cheerful boy.

He would even thank the doctors and the nurses after successfully inserting needles in his tiny arms with tears in his eyes.


(Pic: His blood count was too low, his heart is overworked so he needed help to breathe)

We would like to knock at your hearts again to help this little boy with his medication. We still don't know what other tests will come after this. But we certainly hope to find some light with what is happening inside Jace's little body.

His mom created a new crowdfunding account: https://gogetfunding.com/grace-for-jace/

This will remain active for updates and can still accept donations.

We would also appreciate if you could share any of these two blogs to your friends so we can reach more hearts who can help Jace's medication.

And we ask that you please continue to pray for him. That he remain strong while undergoing those painful tests.

Again and again, we thank you for all the help you have already extended for Jace. And we will always be thankful for a lifetime.

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Update posted by Ma. Catherine Perez On Mar 12, 2016

Hello!

I know you have been waiting for news about Jace's condition. I apologize for failing to update this site. We all got caught up with work and getting back to our normal lives after a month of staying in the hospital.

Jace is doing well. He is still bleeding but he is better.


Jan 17: Jace celebrating his 2nd birthday as his favorite super-hero "Men-men" (Spiderman) one day before his actually birthday


http://bit.ly/1U7u9uM

Enjoying his birthday spotlight


He is now under strict diet. There are a lot of food he is not allowed to eat including chicken, eggs and milk - his favorites. It was hard at first. Imagine removing access to milk from a a little boy when most kids drink milk almost all the time, including sleeping time.

But he is one understanding little guy. It did not take much time before he got used to his diet. He'd get a little envious of his cousins carrying milk bottles in front of him but he will just look away, and smile at you when he sees you looking at him. It used to break our hearts. But we had to be tough like him too. (oh, why did my eyes become wet all of a sudden?)

Despite all that, Jace continues to be a bright little boy.


http://bit.ly/1plgdBd

Jace recognizing some of the numbers :)


He got hospitalized at least twice after he got discharged in November, both for blood transfusion. In fact, he just got discharged from the hospital on Tuesday 2 weeks ago for blood transfusion. His hemoglobin dropped to 3.5 (the normal rate is at 16).


He managed to smile (as always) despite having tubes attached. The oxygen helps him breathe normally since his heart is already over-worked in trying to compensate for the blood loss.


We were advised to have him checked by a hematologist -- for bone marrow. We have yet to bring him to one (we are still looking for a doctor).

Jace is just happy he is getting discharged


If you have noticed, Jace has gained weight from the last photo update in November. He has a good apetite and is not very choosy with his food. He eats anything, even his bitter medicines which he'd gladly chew like candy. He'd even remind us to give him his scheduled medicine in case we forget :)


http://bit.ly/1McOvLn

Here's a short clip from him saying he's getting strong and better :)


This is him, taken today. He shouted "Catt-catt"! as soon as he stepped out of his room. He woke up with a very bright smile and greeted everyone with his mumbled good morning.

No, we still don't know the cause of his bleeding. We are wishing there will come a time when he will not need blood transfusion to survive. We are still hoping this will somehow stop naturally... miraculously.




We have a long way to go, and we would like to thank everyone for helping us raise this cause. I personally want to thank those who kept in touch asking about Jace (I'm sorry for not replying promptly)

Your thoughts and prayers mean a lot to us.

*** I don't know why the story is missing / removed. It's a bit disappointing since I don't have a copy of that write-up. Maybe I'll have to write it all over again :(

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I’m so happy to read an update about Jace. I’m glad he’s doing better these days. He’s such a brave kid. I hope the doctors find the cause of his bleeding soon.

Agnes L

Update posted by Mar 17

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i’m glad to see that Jace is somehow OK and gaining weight... i continue to pray for his healing..

lane virto

Update posted by Mar 14

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Update posted by Ma. Catherine Perez On Nov 25, 2015


Beehive Productions in cooperation with Club Dredd Eastwood presents Music & Miracles



Rock it out on a Friday with music from At The Moment, Agiw Juniorr., HUMANFOLK (Mk.II), fuseboxx, Maryzark & more...



November 27, 2015 (Friday) 9PM at Club Dredd, Eastwood
Entrance: Php 250 w/ drink



About Jace:
Jace is turning 2 on January. He has been bleeding since July of this year and has been in the hospital for almost a month in October. However, after all the procedures he's been through, the doctors still cannot give any diagnosis on his condition. Because of his age, it is considered a rare condition.



To know more about his story and to send in your donations, please visit:
https://gogetfunding.com/pur-little-fighter-jace-needs-your-help/



***If you or your band is interested to perform for this cause, please send me a message.

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Update posted by Ma. Catherine Perez On Nov 17, 2015


Electric Fun Productions Presents:

Jam for Jace

Featuring:

Tanya Markova

Join The Club

Letter Day Story

Android-18

Redlightgo!


With performances from

Ures Attack

Trashbox

Panic Run

Thumbs & Big Toes

Four Piece

Rated PG


November 21, 2015 (Saturday)

JSpot Resto, Marcos Hiway (in fromnt of AMA University)

Ticket Price: P300.00 w/ free drink

Show starts: 8PM

Event page: https://www.facebook.com/events/686307698172742/

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Update posted by Ma. Catherine Perez On Nov 11, 2015

This is going to be a different kind of music gathering.



Enjoy acoustic sets from Andy Saunar, Abby Clutario, Caren Tevanny and Jose at Musika while helping a little boy with his medication.



November 13, 2015 (Friday) 8PM at The Deck, Greenhills
Entrance: Php 250 w/ drink



About Jace:
Jace is turning 2 on January. He has been bleeding since July of this year and has been in the hospital for almost a month in October. However, after all the procedures he's been through, the doctors still cannot give any diagnosis on his condition. Because of his age, it is considered a rare condition.



This is just one of the few gigs we have planned for Jace.

I'd like to thank my friends and my Beehive team for helping me out on this.

Hope to see you there!!

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Update posted by Ma. Catherine Perez On Nov 09, 2015

Last Saturday, his Gastro Intestinal doctor allowed his discharge from the hospital.

After almost a month of being in the hospital, there is no diagnosis or leads to what is causing his bleeding. During the observation period (two days without the antibiotics inserted to him), his bleeding has re-occurred but on a very small amount. The doctor still decided to clear him for discharge because no further tests can determine that small amount of bleeding. We were just so happy that he can finally go home.

He used to be terrified sitting in the wheelchair or down on the hospital bed with his mom as they are wheeled to another room for a procedure. He was sleeping when we moved out of his room but woke up as soon as we reached the lobby. He shouted ?wooowww!? when he saw a different view; he realized he was already out of his room. He said ?bye!? to the people around him. In the car, he couldn?t sleep, his eyes were wide open, head turning left and right as if trying to digest everything he sees. As soon as we arrived home, his eyes grew even bigger when he saw the Christmas Tree my mom put up for him. He was just happy to be home.

Jace reading books sent by one of our kind donors. He loves reading as if he can already read :)

We have not yet won over his bleeding though? since he was released without any diagnosis, we have to be extra vigilant. We were advised to return for a follow-up check-up after a week to see any developments. Sadly, after two days at home, his bleeding has increased.

To those who want to know, he does not feel any pain. His poop schedule is normal. He is active and playful and cheerful as always. It?s just that he has blood on his poop. The last test offered to us by the doctors in St. Lukes is for him to undergo an Angiogram which is too invasive for a kid his age. We?re hoping we don?t get to that stage.

Bleeding taken this morning when he woke up

For now, we are checking all options available for us. We have received a lot of suggestions about his condition like homeopathy, take him to PGH or Children?s hospital, have him take supplements, attend healing mass etc. Thank you all so much for your concern.

In all honesty, the amount I am trying to raise on this site is to pay off his hospital expenses in Medical City without the doctor?s fees. This does not include the bills we incurred in St. Luke?s. I have other fund raising activities set for Jace like bake sale and some benefit gigs all lined up for him. I will be posting the details here, I hope to get your support too.

I may be asking too much but I have a little more favour to ask of you, please continue to share this link so Jace can get more support for his medical bills.

Thank you everyone who helped out for this cause. I have said it before and I will say it over and over again, we are forever grateful for your kindness.

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I think sya yung naadmit ko kanina..get well soon baby Jace. I will pray for you. God bless!

Angeluz Ocampo

Update posted by Nov 11

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We will continue praying for you little Jace! Hope to see you soon kiddo. Keep fighting! God bless!

Heddy Dalisay

Update posted by Nov 09

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Update posted by Ma. Catherine Perez On Nov 05, 2015


Yesterday was Independence Day for Jace. After being connected to cables and wires for almost a month, the doctors decided to remove them so he can now freely use his hands for playing! Hurrah!


REWIND

Last Saturday, he was finally allowed to take in clear fluids.

November 2, he can now take in milk. Imagine his joy when he saw his feeding bottle filled with milk for the first time in weeks. His happy face was the best birthday gift I received.

He gets excited each time the food guy arrives and would shout ?WOOOWWW Mommy!! Baw!? By the way, ?Baw? means sabaw (soup) in Jace?s language J

Gradually, he was allowed to take in jelly and, oatmeal. Yesterday, he was even given vanilla ice cream for snacks! ?Keem! Keem!? Oh, I wish you could have seen how happy he was.

Since he was already allowed to feed, we have been monitoring his poop for any changes. So far, the bleeding gradually lessened and we have not seen a spot for a day. He has a slight fever since yesterday but it was not as bad as before.


FAST FORWARD

His doctor decided to just finish the medicines connected to him and keep him under observation. If there will be no signs of bleeding and his fever stops for about two days, we can finally take Jace home! Yipee!

Sadly, no, they did not find the cause of the bleeding yet. And there is no assurance it will stop completely but we are all hoping and praying for the best.


As I was saying, yesterday was a big day for him. He is finally free from needles and tubes. He wanted to walk and was happy to wear his shoes again.

It broke our hearts a bit to see that he was having a hard time walking. His knees are wobbly and he can?t control his feet. But he was happy and excited all the same. We had to hold him so he would not fall. After a few minutes of walking he complained ?tiit!?(sakit - painful) while pointing at his feet.

He used to run around and even knows how to jump. But now he?s back to taking baby steps. It?s a bit heart breaking but he is such a determined little boy. I am very much willing to teach and guide him again just like we did before? one step at a time.


The battle is not yet concluded but your help has deeply touched everyone in the family. If only Jace knows what is happening around him, I am pretty sure he would love to meet every one of you to personally say THANK YOU for your prayers and generosity.

Please continue to support our brave little boy. We have a series of gigs, a mini concert and a cake drive all lined up for him. God Bless you!


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Get well Baby Jace.

E Andaya

Update posted by Nov 09

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Keep it up, baby! You are always in our prayers. Godbless. Keep the faith.

Racel Profeta

Update posted by Nov 08

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May he continue to get well and overcome this Cathy. Hope we can meet Jace someday. God Bless

Nelle Marqz

Update posted by Nov 05

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Yey!Good job baby Jace! We are looking forward to meeting you soon. ??

Heddy Dalisay

Update posted by Nov 05

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Update posted by Ma. Catherine Perez On Nov 04, 2015

We are overwhelmed by your response to our call for help. In just a matter of days we reached more than 15% of our goal that is totally unexpected. Aside from the online donations, we have received cash donations and bank transfers. I have also received a lot of emails and facebook messages with encouraging words for Jace and the whole family.

Jace is doing a lot better now. He laughs a lot -- and LOUD, he sings along with the songs from the shows we watch on TV, he dances (while seated on the bed) and he can finally eat which made him sooooo happy.

To friends, colleagues, schoolmates, classmates, churchmates, neighbours, family, distant relatives, acquaintances and strangers who shared this link and have donated for Jace, please accept our deepest gratitude.

Please continue to share this link to your friends. We appreciate all the help we can get.

Here's a little gift for everyone... Jace's brightest smile to say THANK YOU EVERYONE!

(He had a slight fever yesterday but he is as cheerful as ever)


"It does not matter how much you give what matters is that you give with love."

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So gwapo Jace! Such a brave boy! I really hope the doctors find out the cause of the bleeding. I read in one of the blogs im following that there’s a similar case and that they are trying to contact the mother of the child so she can get in touch with you to compare notes. Hoping for Jace’s recovery soon!

Agnes L

Update posted by Nov 06

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It’s so nice to see you smiling, Jace! Catherine, has his bleeding stopped yet?

Monette S

Update posted by Nov 04

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Love to see that smile on your face Little Jace! God Bless you always!

Anna Librando

Update posted by Nov 04

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Pogi!

Mauie Flores

Update posted by Nov 04

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Can’t wait to finally meet you brave little Jace! God bless!

Heddy Dalisay

Update posted by Nov 04

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Keep smiling lil’ one :) You have lots of people praying for your speedy recovery! :)

Chip Sillesa

Update posted by Nov 04

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Update posted by Ma. Catherine Perez On Nov 03, 2015

Hi,

I'd like to introduce myself. I am Ma. Catherine Perez - Catt or Tata to my friends and family.

Aside from being a full-time Virtual Assistant, I am this little boy's 24/7 aunt. I take care of him while my sister and her husband are at work. I am really close to this little guy and I treat him like my own. He is my favorite person in the whole wide universe!

I have witnessed everything this little man went through. From the first day of his bleeding in July, to the procedures done to him, up to this very minute I am writing this post while everyone else is sleeping.

It was a really heartbreaking experience.

?Seeing how needles are inserted to him

?Hearing his cries when he is in pain

?Seeing him get agitated everytime a nurse or a doctor comes in the room to check

?Hearing him shout my name "CATT!!!" as he hold out his hand for me to hold when he needs to distract himself from pain

?Holding him while he cries

?See him turn black and blue during convulsion.

?Seeing him with tubes and wires in the ICU

?Listening to all the beeps while watching over him

It was really hard to stop myself from crying but I did - for him.

Jace is one strong boy. He has always been as playful and cheerful as ever despite all those procedures. He never showed any form of weakness during this whole ordeal. He makes everyone laugh with his cute and witty antics. It?s like he?s telling us, the adults, to be strong and happy just like him. He has inspired me more than any living person right now.

I recently just celebrated my birthday in the hospital 2 days ago (see picture). That was when I started this campaign for him. I only had one wish for my birthday? It?s for him to go home healthy and strong.

We have other fund raising campaigns planned and we hope we get your support in those as well. We still have a long way to go but I know God and the Universe will provide.

I personally want to thank everyone who responded to our call for help. Thank you for your kind hearts and good souls.

Friends, colleagues, schoolmates, churchmates, neighbours, family, distant relatives, and even those who are strangers to us? Thank you very very very much. You have no idea how much this means to us and our brave little boy.

~ Catt (the 24/7 tita)

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Be brave little boy, continue fighting.. Your angels are watching you every now and then, and Jesus is always there to help you and he won’t never ever gonna leave you behind.. Godbless little boy.. Will always include you in our prayers..

Aileen Patchelle Buhia-Baya

Update posted by Nov 04

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You’re such a very loving, caring and selfless aunt to Jace...God Bless you! I’ll be praying that he’ll get better soon.

Anna Librando

Update posted by Nov 04

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Hi, Heddy. You have a cute little one! Thank you for your kind and encouraging words. God Bless you and your family

Ma. Catherine Perez

Update posted by Nov 04

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I am also a Tita of 5 and now a mom of an 18 month little toddler so I can feel the love you have for Jace. Keep the faith Tita Catt, God is good! And thank you for sharing your story!

Heddy Dalisay

Update posted by Nov 04

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I am a Tita of 5 and now a mom too! And I feel how much love you have for your nephew. Keep the faith! God is in charge.

Heddy Dalisay

Update posted by Nov 04

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Update posted by Ma. Catherine Perez On Nov 03, 2015

Baymax visited Jace for Halloween.

He was sooooo amazed and happy to see this big "bobot"

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Godbless

Arlene Sy

Update posted by Nov 04

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How fun! It is nice to see your happy face! I am a mom of a 23 months old little boy too and my heart is aching when I read about Jace. He is in my prayers! God will heal him and will get better soon! God Bless your family!

Anna Librando

Update posted by Nov 03

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Great looks like he’s doing well

Gracie Rivera-Hudson

Update posted by Nov 03

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Get well soon.

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In the name of our Lord Jesus Christ you will be healed baby Jace.

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wishing you well baby jace God Bless you

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