Pudendal Nerve Disease

My name is Susie Fanelli, and I have Pudendal Nerve Disease.  For four and a half years, I've been suffering from an excruciating pain from within my lower abdomen.  I've gone through two exploratory surgeries, endless narcotics, and constant pain.  I have literally been to the emergency room hundreds of times.  Back in the fall, I was lucky enough to be treated in the emergency room by Dr. Pam Webb.  She decided to own my case.  She somehow got my health care provider to agree to let me have an MRI.  What a shocker, they found the pudendal nerve deterioration and the tendonitis and torn muscles at the pelvic wall.  There's no cure for this disease, and there's very little known about it.  Consequently, my resources for medical treatment have been limited.  I frequent John's Hopkins for most of the diagnosis and attempts at nerve blocks and botox.  This disease has taken over my life and I am sick and tired of being in pain.  The mecical bills have been astronomical and I can't work because I never know when I'll have another episode.