A few months back, I raised money for a little boy named Michael who had Dystonia & Gaucher's Disease. I met him and his family when they came to buy a new mattress for him, with the hope that a new bed might help to ease some of his pain. His mother explained that he had not slept at all since he was diagnosed in the summer of 2013. The boy was visibly ill, and I felt helpless in terms of finding... a solution. After an hour of giving him my undivided attention, I put him on a memory foam bed, adjusted it to the zero gravity position, and he practically fell asleep in a matter of minutes. He has been in the hospital for 19 weeks today, starting the week after I met him. Most of that time has been spent in the ICU. He has never had the opportunity to sleep on the mattress his family bought for him. I raised money to buy him toys to play with while he was in the hospital, but I never thought he would still be in there today. After I made such a big deal about it, my company actually gifted them the mattress and refunded all of their money. Although I have done a lot for him and his family, I cannot help but feel that I have not done enough, especially after the recent news I have received. After months of testing, and research, the doctors have discovered that he does not have Dystonia. Instead he has Stiff Persons Syndrome. It is such a rare disease that there is absolutely no cure. They have been doing some research in Canada. Since they do not have enough funding for research, I wanted to start a fund and raise money for Michael's medical bills. The only thing is, I am going to need more help than from just my friends and co-workers. I am starting a "Project Michael" fund so everyone can donate to this cause. I strongly ask that you donate and share this so we can bring awareness to the disease and help people like Michael. Thank you.