This is our baby Aisha Jazz Repil. She is a premature baby who weighed only 715 grams when I delivered her through Emergency Caesarean Section last May 8, 2019, because my blood pressure was 180/100mmhg due to my condition known as Antiphospholipid Syndrome (APAS, Antiphospholipid syndrome involves excessive blood clotting) and she was in breech presentation (buttocks is the presenting part not the head).
For the first two weeks of her life she was diagnosed of pneumonia and was treated with antibiotics.
She was doing well and only attached to Oxygen hood at first then to Oxygen cannula until she experienced on May 23, 2019, Desaturation (Low oxygen levels in the blood), Hypothermia (Low body temperature), and sleep apnea so she was intubated and attached to a ventilator for breathing assistance.
Her Pediatrician told us, after the results of the laboratory and diagnostic tests came out, that she acquired an infection, Klebsiella bacteria positive.
Because of the infection, her oxygenation is affected, and her immune system cannot fight back because it is not well developed since she is a premature baby. The infection causes her blood platelet and White blood cells (WBC) to go down even after more than 10 blood transfusions of platelet concentrate, fresh frozen plasma and packed RBC.
She also experienced anemia (RBC and hematocrit levels went down). She still has pneumonia. Her veins are very hard to find so the nurses are having a hard time inserting IV line for Blood transfusion. When they insert an IV cannula it easily bleeds and rupture.
Presently she is experiencing sepsis and Disseminated Intravascular Coagulation (DIC, a serious disorder in which the proteins that control blood clotting become overactive, source: Medline plus), due to her infection.
Until now, the infection is still present, and we keep on transfusing blood to her. She will be turning 1 month old on June 8th and that is also the length of time that she is staying in the Neonatal Intensive Care Unit (NICU). We are financially troubled due to her daily expenses for the supplies needed, medicines, blood, equipment such as ventilator, IV infusion and syringe pump, drop light, blue light, oxygen tank, and hospital accommodation.
I am currently on maternity leave and my salary for three months isn't enough to cover for our daily expenses. We really do not have financial source, so we are sincerely knocking at your hearts for any help you could offer or extend.
Baby Aisha Jazz is really fighting this battle as well as we her parents and family. We were told that she will be staying for about 3 months in the NICU. We cannot afford the bill and expenses. On her almost 1 month of stay in the NICU our hospital bill is already Php 300,000. Again, we are pleading to your kind and generous hearts for support and continuous prayers.
Maria Irene M. Repil, RN
Jason D. Repil