Pomozimo Eni Škoda da prohoda

(for English please read below)

Naša Ena ima nepunih 12 godina i liječi se od rođenja. Ide u u 6.razred Osnovne škole Jurja Dalmatinca u Pagu. Rođena je s jednom rijetkom genetskom bolesti, neurofibromatoza tip I –NF 1. Jedan od simptoma te bolesti je pseudoartroza lijeve potkoljenice, laičkim jezikom rečeno, krta kost loše kvalitete, koja teško zacjeljuje kad pukne. Nogica joj je puknula čim je prohodala i od tada ide na operacije po bolnicama. Do sada je više puta bila bezuspješno operirana i doktori u Hrvatskoj su nakon sedme operacije predlagali amputaciju. Tada smo odlučili potražiti pomoć van Hrvatske i pronašli ortopeda u Beču u klinici "Speising", koji nam je dao nadu u ozdravljenje. Odlasci i operacija u Beču su veoma skupi, pa smo pomoć zatražili od HZZO-a koji je odobrio platiti operacije i dio putnih troškova.

Medjutim ljetos je Eni pronadjen i tumor između malog mozga i kralježnice, kojeg je potrebno odstraniti prije same operacije noge. Taj nalaz je dodatno zakomplicirao tijek planiranog liječenja i pred nas postavio i nepredvidjene nove troškove. Ortopedska klinika "Speising" u Beču ne raspolaže neurokirurškim odjelom, koji je nužno potreban dodje li do komplikacija usred operacije noge.

Stoga smo bili primorani potražiti drugu kliniku, koja ima i neurokirurški i ortopedski odjel. Tako bi Ena trebala biti operirana tijekom prve polovice 2021. u švicarskoj bolnici "Ostschweizer Kinderspital" kod Dr. Klima i Dr. Hengartner.

Kako Enino liječenje pseudoartroze i tumora iziskuje dugotrajno liječenje, tako su i troškovi učestalih putovanja u Beč i u Švicarsku (participacije, PCR testovi, lijekovi, zavoji, pregledi, nova ortoza, putni troškovi) vrlo visoki. Mi kao roditelji s malim primanjima s Enom i njenim mladjim bratom Krunom se nalazimo u težoj materijalnoj situaciji, te smo iscrpljeni dosadašnjim visokim troškovima liječenja.

Molimo vas pomoć u obliku: donacije, dijeljenja ove kampanje putem društvenih mreža, širenjem informacije drugima.

Više o našoj maloj hrabroj lavici možete pročitati ovdje: https://www.facebook.com/DonacijezaEnuSkoda/

Donacije iz Hrvatske: Ivana Škoda, HPB banka, IBAN: HR8223900013211653263, Donacija za Enu Škoda

Donacije iz inozemstva na devizni račun: Ivana Škoda, HPB banka,

IBAN: HR8223900013211653263, SWIFT/BIC: HPBZHR2X, Donacija za Enu Škoda

Hvala vam od srca!

Obitelj Škoda

************************************

Ena is turning 12 years soon and she has been receiving medical treatment since birth. Thank you all from the bottom of my heart for supporting us and helping with donations in this difficult situation by making a donation to the account number of Ena's mother.

Donations from abroad to a foreign currency account: Ivana Škoda, HPB banka,

IBAN: HR8223900013211653263, SWIFT / BIC: HPBZHR2X, Donation for Ena Škoda

Our little brave lioness goes to the 6th grade of the Juraj Dalmatinac Elementary School on the Island of Pag, Croatia. She was born with a rare genetic disease, neurofibromatosis type I-NF 1. One of the symptoms of this disease is pseudoarthrosis of the left lower leg, in layman's terms, brittle bone of poor quality, which is difficult to heal when it breaks. Her leg broke as soon as she walked and she has been going to hospitals for surgery ever since. So far, she has been operated on several times without success, and doctors in Croatia suggested amputation after the seventh operation. Then we decided to seek help outside Croatia and found an orthopedist in Vienna in a renown orthopaedic clinic "Speising", which gave us hope for recovery.

However, this summer, Ena was diagnosed with a tumor between the cerebellum and the spine, which needs to be removed before the leg surgery itself. This finding further complicated the course of the planned treatment and set us unforeseen new costs. The Speising Orthopedic Clinic in Vienna does not have a neurosurgical department, which is absolutely necessary if complications occur in the middle of a leg operation.

Therefore, we were forced to look for another clinic, which has both a neurosurgical and orthopedic department. Thus, Ena should be operated on during the first half of 2021 at the Swiss hospital "Ostschweizer Kinderspital" by Dr. Klima and Dr. Hengartner.

As Ena's treatment of pseudoarthrosis and tumors requires long-term treatment, the costs of frequent trips to Vienna and Switzerland (participations, PCR tests, medications, bandages, examinations, new orthoses, travel costs) are very high. We as low-income parents with Ena and her younger brother Kruno are in a more difficult financial situation, and we are exhausted by the high costs of treatment so far.

Please kindly help, if you can in the form of: donations, sharing this campaign via social networks, disseminating information to your circles.

You can read more about our little brave lioness here: https://www.facebook.com/DonacijezaEnuSkoda/

Each of your share steps is closer to the goal, thank you so much for your kind help!

Donations from abroad to a foreign currency account: Ivana Škoda, HPB banka,

IBAN: HR8223900013211653263, SWIFT / BIC: HPBZHR2X, Donation for Ena Škoda