My 17-year-old nephew born with hemophilia, a genetic disorder, wherein blood doesn't clot normally. Her name Akash. He’s been in and out of the hospital since he was a baby, hampered from living a normal life. Maintaining treatment and a “hemophilia-friendly” lifestyle in the Bangladesh is expensive.
When the Akash is 2.5 years after the hemophilia was caught. Allah sends the heavens to an insignificant family.But the family does not have the power to treat the Akash. Growing up, there’s been countless of unfortunate incidents.
The Akash does not understand the sport. The doctor forbids everything.All day spent cutting his time in 4 walls. For 2.5 years, he has struggled with the life of two feet of ankle infection.
A few days later, his ankle became swollen. Doctor says India or out of the country and to show the doctor. It is not possible for her family to go out.
On a normal day, he’d experience swelling and bleeding in his joints whenever he puts uneven weight on them while sleeping - or without obvious cause.
Every time any serious bruising happened, he had to be confined in the hospital and transfused with Factor VIII, a protein needed to form a clot and stop the internal bleeding. One vial of Factor VIII costs around (US$200).
Despite his condition, this kid never complains.
Over a week ago, he suffered a cut on his teeth, causing it to bleed heavily. Doctors initially injected him with two vials of Factor VIII. But the problem was more severe than we thought. (We’re praying hard this won’t happen.)
As this is a lifelong disorder, doctors have also advised us to deposit a certain amount to reserve vials for future needs as supply can be a problem.
Although the family continues to work hard and work together to provide for Edj’s medical expenses, it’s never enough. We’ve used up our savings on medical expenses over the years, so we’re humbly asking for your kind help in raising (US$1,700) to settle what we can out of the medical bill and possibly avail of the hospital’s offer to reserve more vials.
Akash has big dreams. He wants to finish school (home school), be a engineer.