Brain for an infant with a rare fatal illness. Help urgently needed.
The boy is not yet a year old, and he has a rare and fatal disease - West syndrome. For treatment is required. For a family with two children, this amount is unbearable. The baby was born prematurely: at the 28th week of pregnancy, the doctors decided that an urgent need to have a cesarean section. The weight of the newborn was less than 1.5 kilograms. The first two weeks the baby had to spend in intensive care - his lungs did not open. After this there was a hemorrhage in the brain, hydrocephalus - cerebral edema. Max was operated on and a shunt was installed to pump fluid that stretched from head to abdomen, his mother said.
The problems did not end there. The boy could not gain weight, because of undeveloped muscles appeared hernias. In addition, he was diagnosed with stomach erosion, intestinal inflammation, severe abdominal pain, fever, and headaches. Max was again in intensive care. After some time, the doctors made a terrible diagnosis: West syndrome. This rare disease, which is a severe form of epilepsy, usually occurs in infancy and is constantly progressing. If you do not start treatment on time, child. But the treatment is very expensive mom raises two children alone, and this amount alone can not be overpowered. Now she and her son are in the Republican Center for Psychoneurology and Epileptology. “The neurologist told us: Therefore, now we are undergoing a course of hormonal therapy so as not to completely lose the brain. he will be given an EEG (electroencephalogram of the head, which is a study of the brain through exposure to its cells with electrical impulses). If everything is okay, they will write us out, and we will have to go to Spain for examination, ”my mother said.
Each attack for a small max is like a powerful electric discharge in the brain. The more often they are repeated, the more difficult it will be to treat it. Doctors give good chances for recovery, but you need to act quickly.