I believe that every woman's dream is to have a child and a family. In my case, I've wanted to be a mother all my adult life. From the moment you are pregnant you know that it is the begining of something beautiful that will last forever. The day our baby girl Jasmine was born was supposed to be the greatest day of our lives. Unfortunately, it ended up marking the begining of our never ending journey through hell.
Jasmine was born with lamellar ichthysosis, a disease where she was born with an extra layer of skin called a collodion membrane that covered her entire body. Her case was particularly severe and spawned a multitude of other issues we could never even have imagined in our worse nightmares. At birth, we found out that the disease led to her becoming almost entirely blind. As the skin peeled off she developed sores covering her entire body. She was unable to breathe through the membrane at birth, and that lack of oxygen caused her major damage to her brain.
The doctors told us that she would most likely become mentally retarded, and that her eyes would need a series of surgeries to help her to see. Fluid pockets developed over her entire body, and her body tempature was so low that she felt cold to the touch. She stayed in intensive care for months before they moved her, but problem after problem after problem followed these initial issues. The worse part is that my baby is in constant pain. We all know that sometimes you have to expect the unexpected but who would ever expect that their little baby girl would be born with such a debilitating disease. There are so many things that I wanted for her but now all I can pray for is that my child can live and have chance at a normal life. I want nothing more than to bring my baby home healthy.
She's the light of my life. Her doctor told us that without the proper surgeries, there's nothing much that we can do except monitor her and try to keep her comftorable. I lost my job due to me spending 95% of my time in the hospital sitting next to my baby girl. It's been a year since she was born, but throughout the year she has spent the better portion of her life in the hospital. We have drained all the equity out of our home, taken out loans, and everything else possible to raise money but it seems like we can't even make a dent mounting medical bills. It tears me apart that my baby is forced to sleep at a hospital every night suffering due to the severity of her disease and I cry on nights I can't be by her side, and even when I am be by her side I sometimes still cry. I have to leave the room because I don't want her to witness it because I know she needs all the strength she can possibly get and I know I need to be strong with her.
Things are reaching the point where we have nowhere to turn to for money and we won't be able to cover her medical bills anymore and she will lose the medical treatment she desperately needs. I would rather die a billion times over than to let my sunshine down. She is worth the entire world and more to us! And I know I can't resume my life until I know ensure my baby's future. This is why we are reaching out to any and everyone for help. Even if your can only afford to donate a dollar please do so. Every single penny we recieve is another step towards bringing our daughter home. Please anyone that has a heart please reach out and help us save Jasmine, she deserves it.