We are a group of people (Dublin based) who are fundraising to send EDS sufferers Marie Fitzgerald and her daughter Sheena, aged 21, to London for treatment.
EDS (Ehlers Danlos Syndrome) type 3 is an incurable disorder of the body’s connective tissue. It’s a very painful debilitating disorder. EDS sufferers have to deal with chronic pain, dislocating joints, fatigue, nausea, blood pressure problems, fragile skin, headaches on a daily basis.
There is NO specialized medical care for EDS sufferers available in Ireland. NO Clinics, NO doctors specializing in EDS treatment. Very few doctors have any knowledge of EDS or its existence so Marie and Sheena have had (and will have in the future) to travel to London get the treatment and therapy they need to exist with EDS. This involves cost of treatment plus travel and accommodation. There is NO possibility of getting Government funding. To qualify for funding for treatment abroad you need to be referred by a specialist in Ireland and as there is no EDS specialist here no funding is available.
For more information about our progress and evens check out our Facebook page https://www.facebook.com/pg/Marie-and-Sheenas-Trea...
We would be most grateful for any help you can afford:
For more details on Ehlers Danlos Syndrome you can visit the Irish EDS & HMS, EDS Awareness Ireland and Ehlers Danlos Support UK Facebook pages.