Zion is the most love able and positive toddler - which is always laughing. He turning 4 by the end of September. He was born on 30 weeks with some complications. He is a real fighter and recovered so well. He has asthma due to the fact that he was born so early and his lungs didn’t developed 100 %. But we manage it very good. But when he started walking he started struggle. He falls a lot and started walking on his toes. At first we and the doctors thought nothing about it, but it get worst and worst. At this point he can walk on the tips of his toes. His toes are red and swollen and have calluses and blasters due to inflammation.
He went 2-3 times a week for physiotherapy but it doesn’t get better and it hurt him so much - he was crying so much! Now we know it hurt that much because his muscles were to short and in fact it were tearing every time when the stretches were done.
Finally we come across a very nice specialist. He told us that Zion has some type of Cerebral Palsy. But at this stage he can’t say if it is Hemiplegia or Diplegia. It started at one side of his body but now both sides are effected. There is also a possibility that he has bleeding on the brain.
But unfortunately the medical aid that he is on, doesn’t cover the costs. Can’t afford another medical aid and even when we get him on another medical aid, his treatment will be excluded.
First he must go for a Brain scan and other tests to establish the state of the bleeding and to see what type of Cerebral Palsy he has. After the results the specialist (they will work as a team of Pediater/Neurologist/Physoterapist/Therapist etc) will know if he must get an operation to treat the bleeding on his brain.
To start treating his Cerebral Palsy, he must go for Botox injection in both his legs (it is to relax his muscles) - at first 2 weekly intervals which will become 2 monthly intervals. Then the time in between will extended up to every 6 months and so on. He will also wear braces. From the first week he must get intensive physiotherapy and other treatment which includes occupational therapy and psychological therapy. If all this is not successful. they will extend his muscles and operate on his hips and legs.
It will be a long process and the nearest facilities are 400km from us. Because he will get daily physiotherapy and other treatment he can’t leave the city. I will stay with him and his parents will come to visit over weekends (they just start new job to take better care of him).
It gonna be a long and hard road for all of - especially for Zion - but we are so positive! Zion is a normal toddler that LOVE sport and he want always to play with a rugby ball or any ball.
It break our hearts to see how he is struggling and the pain he is in. His condition worsens weekly and we rally want to help him while it is cure able.
But like his name Zion mean - Jesus favorite mountain/place we know his love for Jesus and Jesus love for Zion will carry him through this with the help of people and with the help of you!!!
Thank you so so much for reading Zions’ story ❤️