Paris-Brussels Bike Ride for the European Haemophilia Consortium
Fundraising campaign by
Marijn van der Sluijs
-
€445.00raised of €360.00 goal goal
Campaign Story
The Sobi charity bike ride continues! This year, with a team of Sobi colleagues, I will be cycling about 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to raise money for the European Haemophilia Consortium (EHC).
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi in haemophilia
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ to develop and advance haemophilia care. Sobi’s history of innovation in haemophilia is the foundation for our pioneering research today and for our long-term commitment in supporting the haemophilia community.
Organizer
- Marijn van der Sluijs
- Campaign Owner
- Sollentuna, SE
Donors
- Hege Hellstrom
- Donated on Sep 10, 2017
Wishing you a fantastic bikeride!
- joost de schepper
- Donated on Sep 08, 2017
tit for that
We made it!
Update posted by Marijn van der Sluijs at 07:56 amAfter some 350 km, we made it to Brussels where were welcome by representatives from the EHC as well as colleagues representing the EMENAR and BeNeLux teams.
Coffee break
Update posted by Marijn van der Sluijs at 08:42 amMaking good progress getting into Belgium so we have time for a nice coffee break.
Some challenges on the way
Update posted by Marijn van der Sluijs at 06:59 pmBefore lunch today we met some challenges in terms of flat tires and more rain. Still, the afternoon ended with sunshine and we arrived in Valenciennes safely!
A rainy afternoon
Update posted by Marijn van der Sluijs at 09:24 pmWatch this short video on my instagram to get an impression of the afternoon weather.https://www.instagram.com/p/BYyhnUjnT6hEGVjBBKFiektDiRAxf-ucRbpgSk0/
Bon voyage!
Update posted by Marijn van der Sluijs at 08:11 pmRepresentatives from the French affiliate team came to see us off and wish us good luck on the ride
On our way to Paris!
Update posted by Marijn van der Sluijs at 07:11 pmReady to board our flight and looking forward to meeting the rest of the team in Paris!
Donors & Comments
- Nassia Manias
- Donated on Sep 13, 2017
So proud of you and the team - great cause!
- Hege Hellstrom
- Donated on Sep 10, 2017
Wishing you a fantastic bikeride!
- joost de schepper
- Donated on Sep 08, 2017
tit for that
- Maaike Janssen
- Donated on Sep 08, 2017
Heja heja zet m op!
- Susan Cook
- Donated on Sep 07, 2017
Well done on this great initiative
- valerie bastard
- Donated on Sep 07, 2017
- Charlotte af Klercker
- Donated on Sep 07, 2017
Go team!!
- Charlotte Pahl
- Donated on Sep 06, 2017
- Meike Sodenkamp Dahlen
- Donated on Sep 05, 2017
Ha en härlig cykeltur Marijn!
- Kristina Lindsten
- Donated on Sep 05, 2017
So proud of you and the team - great cause!