Paris-Brussels Bike Ride for the European Haemophilia Consortium
Fundraising campaign by
Peter Hauptig
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€305.00raised of €360.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
The Sobi charity bike ride continues! Last year we cycled from London to Paris. This year a team of Sobi colleagues will continue by cycling about 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to raise money for the European Haemophilia Consortium (EHC).
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi in haemophilia
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed early and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ and has developed a new generation of haemophilia treatments. Sobi’s history of innovation in haemophilia is the foundation for our pioneering research today and for our long-term commitment in supporting the haemophilia community.
Organizer
- Peter Hauptig
- Campaign Owner
Donors
- Ingrid Näsman Björk
- Donated on Sep 05, 2017
- Carina Ekholm
- Donated on Sep 05, 2017
Great initiative!
- Carin Dahlquist
- Donated on Sep 03, 2017
Ha det riktigt kul! Jag kommer att tänka på er och ser fram emot att få se bilder från resan!
The fundraising has now stopped
Update posted by Peter Hauptig at 09:14 amThe collected funds will now be forwarded to EHC. A big thank you to those who have contributed! /Peter
The bike ride and the fundraiser continues, but I will not ride
Update posted by Peter Hauptig at 07:31 amAs some of you know I got an inflamed tendon in my knee when running in the mountains early August. I thought treatment with COX-2 inhibitor and physiotherapy would solve the issue before our bike ride, but it seems I did something wrong with the physiotherapy over the weekend, so
Donors & Comments
- Ingrid Näsman Björk
- Donated on Sep 05, 2017
- Carina Ekholm
- Donated on Sep 05, 2017
Great initiative!
- Carin Dahlquist
- Donated on Sep 03, 2017
Ha det riktigt kul! Jag kommer att tänka på er och ser fram emot att få se bilder från resan!
- Katrin Andren
- Donated on Sep 01, 2017
Good luck Peter!!
- Fabrizio Papa
- Donated on Sep 01, 2017
- Kristina Köhler Van Alstine
- Donated on Aug 30, 2017
- sara Ghalib
- Donated on Aug 25, 2017
Heja!
- Christina Sörving
- Donated on Aug 25, 2017
Have a good ride Peter!
- Sandra Tetu
- Donated on Aug 22, 2017
Great example of Sobi CARE values, very proud of you doing this Peter. Enjoy and HAVE FUN!
- Tiina Tasa
- Donated on Aug 22, 2017
Good luck and have fun! Best wishes to all of you! P.S. Will miss this ride and all the team a lot :)