Para-Cycling for NP-C rare disease
Fundraising campaign by
Christoph Poincilit
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CHF0.00raised of CHF2,500.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
A "Think Again - Think NP-C" team will be supported by NPSuisse for the Para-Cycling World Cup in Corridonia - Italy. This participation will help in many countries Niemann-Pick patient associations to promote awareness of this devastating ultra-rare disease. The team: Raphaël Beaugillet (blind because of a rare disease) and Noël Richet (the pilot) will be supported (travel and accomodation) by NPSuisse. Any surplus on top of the financing of Raphaël and Noël will be given to INPDA the international Niemann-Pick Disease Alliance which will meet in June in Lyon.
Organizer
- Christoph Poincilit
- Campaign Owner
No updates for this campaign just yet
