One Heart for Eira

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Frechel Eira, a 3 year old heart warrior has been diagnosed with Congenital Heart Disease since she was a week old. From that time onwards, she had been in and out of the hospital for treatment and management. In fact, she was given only a year to survive if no surgical intervention will be given to her. With the desire to let Eira live a longer healthier life, we decided to look for other ways on how the open heart surgery be made possible. On the 25th of September 2018, she had her life-saving open heart surgery at Maria Fareri Children's Hospital, Westchester Medical Center at Valhalla, New York through the Gift of Life Program of Rotary District 7490. The surgeon had performed 5 procedures in 1 operation. He even told me that this will be a very risky procedure due to the complexity of Eira's condition and she might need another procedure when she turns 9 or 10 ten years old. Weeks passed and Eira did well. On December 15th, Eira was admitted at the Immaculate Heart of Mary Hospital in our province due to swelling of eyes/ face and dificulty of breathing. Xray was done and showed massive pleural effusion. No pedia-cardio was available in our province so we decided to take her to the city for further management. On the 19th of December, Eira was admitted at the Philippine Heart Center due to massice pericardial and pleural effusion and was directly put in Pediatric Intensive Care Unit (PICU). Early morning the next day, she was brought to the operating room for emergency tube pericardiostomy and CTT insertion. The procedure was tolerated well and she was transferred back to the PICU. She was put on a mechanical ventilator for a couple of days and was transferred to the service ward when she became stable and was discharged on the 10th of Januray 2019. Doctors said it was chylothorax, a complication a patient usually gets after a Glenn shunt procedure (Eira had this). When we brought her back to PHC for her follow up check up, she had, again, difficulty of breathing and was the reason for her readmission on the 14th of January. Several tests were performed and several medications were administered; was discharged on the 21st. Up to this moment, she is still going back and forth to the PHC and her xray still shows fluid accumulation in her right lung and she is still under close monitoring. She is on maintenance of her medications and still needs more work ups. Help is needed to suffice her medical needs. She is on a special diet as part of the treatment, one of which is a specially formulated milk, Nutramigen amounting to P1166.00 per 400 grams/can.


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