Hello my dear friends, Its me Mohammed Ibrahim, I am a little miracle. I was born on 24th June 2016 I could not breath so the doctors put me on ventilator support. The next day they found out that i could not poop, my anus had no opening and my heart has a hole along with and opened PDA. I was shifted to another hospital for surgery on my 3rd day of life. Recovering after 24days in NICU we went home normal but I cam back again in a rush as i change color to blue. They put me on ventilator again and found out many more things that makes me different.
I have central hypotonia(an issue from the brain for muscle weakness), Failure to thrive(cannot put on weight easily), Pulmonary Hypertension(related to the heart n lungs), recurrent pneumonia, Global developmental delay, GERD, Severe acid reflex, feeding by tube.
With all these conditions the doctors had no choice but to operate me with tracheostomy and put me on ventilator(breathing machine). Again I was operated to close my PDA as it was risking my life. My parents struggled a lot to as my operation alone cost them AED80,000.
4 months of stay in ICU with huge bills we were discharged home on ventilator, dad had to make a MINI ICU AT HOME to help me survive. It cost him a total of AED400,000 and a lot of struggle.