Hi, my name is Heather. I am 31 years old. I was born with a rare genetic vascular malformation known as glomuvenous malformations. Here is some information about my condition:
My malformation appears on my entire right arm: thumb, palm, forearm, upper arm, and onto my right chest. They appear as little raised blue blebs.
Due to my condition I am suffering from chronic pain (about a 7 every day). This worsens due to weather, hormonal changes, strenenous activites, and if the sites are touched/hit.
Since I was 11 I have had 7 procedures and surgeries. In 2011-2012 I had 2 sclerotherapies and 1 resection. However, the relief from these surgeries was short lived and I have since begun to suffer once more. The most problematic is the weakness in my hand and wrist.
My doctor suggested that I try a compression stocking instead of another procedure. I tried one in high school and it helped tremondously. However, the company does not accept my insurance and with my limited income I can not afford it on my own.
Please help me.
Thank you for reading my story. May God bless and keep you always.