Ksenia was born with congenital atresia of the right auditory canal and microtia.
In 2016, in St. Petersburg, Ksenia was operated on, and an auditory canal was opened to her. Unfortunately, it was not possible to recover the rumor, even the doctors who operated on it could not explain the reason. The doctors recommended that we wait several months after the operation, but even after three months the hearing did not appear, but a complication began. We had to again urgently fly to St. Petersburg, where Ksenia stabilized the state. So two years have passed of constant complications and flights to St. Petersburg, since it was not always possible to stabilize the condition on site. In February 2018, Ksenia did a second operation to restore her hearing, she was installed a titanium prosthesis, but this time we did not achieve a positive result. Complications have only become more frequent, the hearing has not recovered. Doctors recommend another surgery in half a year.
After that, it was decided to attend the conference and get a consultation from world-renowned otology specialists to doctors of the Global Hearing clinic which was held in Moscow in April 2019. After examining Ksenia, Dr. Joseph Robertson, he found her cholesteatoma. A cholesteotome is a destructive growth (tumor) of the cornified cells of the squamous epithelium (skin cells), often called a skin cyst, located at the base of the skull and in the middle ear. It is congenital and acquired. Complications arising from cholesteotoma are dizziness, paralysis of the facial nerve and brain infection - meningitis, which can be fatal. Also, frequent discharge from the ear and dizziness, which we have observed constantly. A standard procedure for removing cholesteotomes is a surgical procedure.
Ksenia is 9 years old and there is an active period of growth. The older the child, the faster the cholesteatoma grows. As consequences if we do not remove it in the near future, the doctor described to us our entire subsequent history (facial nerve paralysis, meningitis ..) We also have to deal with hearing problems. To help Ksenia hear all the children, you need to have an operation.
Unfortunately, the invoice amount is too huge for our family. We ask for help from all caring people - help, please, return the ear and happy childhood of our daughter!