I was diagnosed with cancer on 27th of September 2014 it came close to taking my life which the doctors said I had a few weeks to live if I didnt get admitted to hospital as soon as possible due to my body staving for air which was causing my body to slowly shut down. They admitted me straight into the cancer ward at Royal Brisbane hospital where they started chemotherapy straight away in the next few days. I was in there for about a month then I was able to go home and just return to the hospital for weekly for chemotherapy treatments and check up appointments. Due to the chemotherapy working I was told I had the all clear in February 2015 so that was a good sign or so I thought!!. But after a few weeks I began to feel a strange abnormal pain in my left leg. Which continued to grow stronger over the next 4 months in May 2015 the cancer specialists decided they would do a pet scan and it showed that the cancer was back and then they discussed that they would do a procedure on my left leg which I had to remain Conscious for them to open a section of my upper thigh as they needed to take a bone sample the procedure lasted two and a half hours due to the results of the samples I was then rushed off for surgery three days after to get a metal rod inserted into my left thigh starting from my hip to my knee as the bone in my thigh was ready to break I have been the only one to have had lymphoma in the leg bone it is very rare as no specialist has ever seen it before. Then more chemotherapy, then my stem cell transplant happened in November 2015 which I s then out of hospital December the 15th but I got taken by ambulance on January 1st 2016 to hospital cause I was extremely sick. The specialist took 1 week to do test to only show the cancer was back again they have not seen this type of cancer move to stage 4 rapidly so quick. They then decided more chemotherapy and radiations was needed and also another stem cell transplant my brother and sister did test to see if they were compatible to donate their own cells my sisters results came back negative but luckily enough my brothers came back positive the procedure happened on the 22 April 2016. I had Bad side-effects from the stem cell that I had severe infections in my mouth and throughout my body They almost had to put me in ICU but it never come to that but I came so close I couldn't eat for 8 weeks in hospital i had to remain in Isolation until August 1. I was able to go out In short periods but still have to be extremely careful. Still to this day I still experience Pain in my body in both legs, hands and head it continues to get worse the specialist are trying to come up with ideas and Test the try to fix this. The only option is for different medications and for my body to heal from this. I'm unable to work or live a normal life without being in pain every minute of every day. I've had high doses of chemotherapy and radiation since then and 2 stem cell tranplant my last one was 22 April 2016 since then my body hasn't been able to get any better the cancer is now finally In a non active state Although I have an infection that they have not seen and they have preformed all the test that they have on records to find out what the infection is. They keep putting me on new medication to try and help with the pain and infection but sadly none of them seem to be working. I also devoted my life before the cancer hit me by volunteering in my spare time to work at schools and I was a youth leader at youth camps I had to give that up for the time being which I hope I won't have to for much longer. I suffer from excruciating pain that makes me not able to walk far at all and they say I won't be on the path to have a normal life like I loved and enjoyed before I got sick my hands hurt so bad and there is nothing they can do without trialing new medication and more appointments and its very hard to pay for all medication and other things needed to try and stop this horrible pain . I'm utterly heart broken by the doctors constantly saying that they don't know what's wrong with my body and how to fix the pain I go through caused by GVHD which is one of my many infections the specialist believe it could take years to recover from it they also ssy my left leg will never heal from the pain and ill have to live with this pain for the rest of my life.
I up at Royal Brisbane Hospital 3 days a week for them to try new medications cause I have to come up with money for the trails and it not cheap at all this include the testing too. So they can help out other patients in the future cause they can't close this book how to cure me from this really bad GVHD and all this pain that I been dealing with over 10months and not getting any better
i would kindly love to thank everyone who has been there for me over the past years and also a big thank you to everyone reading my story also help out by donation money to help me out. If you can spare anything that would be much appreciated. To help pay for the medications there going to tryout.
I wish god Will be with you and help you in life