A year on from the start of this campaign, Myself and Nakita have been in search of a new Family home together..
This transistion has been far from easy. Finding a location close to Nakitas school and friends was extremely hard. We had to leave our home of almost 10 years was hard especially hard.. So much had already changed in our lives, this was our safe zone.
So finding a new accessible home was a new priority.
We Have recently moved into our new home. And in time we give Nakita the Independance she deserves..
This is our story.
While on family holiday Nakita was learning to surf on the sand with her Daddy. After jumping up and falling awkwardly she suddenly lost the use of her legs..
I remember her saying....
" Mummy my legs are sleeping."
We were taken to Faro hospital where we were told Nakita had Transverse Myletis a legion on her spine. . After a month In Faro we were finally given the all clear to fly home. I can remember thinking once back in UK they will be able to help Nakita recover.
We were transfered to Bristol Childrens Hospital where we were finally given the devastating news Nakita wasn't responding to treatment and that there was were going to be more tests.
It was Christmas Eve we were allowed home for a few days . We hadn't been home since leaving for Portugal all excited. But it was so good to be home especially for Christmas Day.
It was when we returned to hospital that we were finally given answers.
Surfers Myelopathy Nakita was 1/64 cases to been diagnosed and was far one of the youngest. A blockage in Anterior archery. We were told she would be unlikely to ever walk again.
Nakita is such a happy little girl and has the strength and determination that would put us all to shame.
We discharged from Hospital end of Feb 2016. Almost 6 months in hospital. Nakita returned back to school. Where with the support of her friends and teachers such confidence. Nakita was to perform in a class dance on stage at our civic center in front of a large audience.. Nakita overcomes the daily challenges that she's faces.with such determination and always she is always smiling.
However recently she noticed how her legs were so skinny which broke my heart.
There is equipenment FES electrical stimulation that would rapidly help increased muscle mass and help Nakita waking her legs up again...