Muzzammil’s Heart Surgeries

Update posted by Chantal Bezuidenhout On Dec 15, 2016

Death is a daily occurrence, an inevitable end to the accepted "three score years and ten" model, a homecoming and part of the cycle of life. I haven't ever been totally devastated by any death in the family - my exposure has been limited to the passing on, naturally, of older family members and one member of my generation who succumbed to cancer with all it's inherent traits of pain, wasting, the inevitable death but also the opportunity to travel a path with the sufferer and to say farewell.

My thoughts on this have often turned to my children and grandson. What would I do if they became ill? Too ill to live another day? Too ill to put one foot in front of the other? Too ill to breathe? What would I do then? How would it feel? In my heart? That part of my body that houses their souls? Would it blacken with sorrow?

I remember the tiny babies I held in my arms, the babies I smiled at endlessly, drooled over endlessly, spent sleepless nights awake with - it seemed endlessly! - have now grown into amazing, confident, independent women. They are kind and generous and funny and wild. Just to wrap them in my arms sometimes, is enough for this soul.

And I return to my conversation with Muzzammil's mom tonight. In tears, heartbroken and totally at a loss. Her child is dying. A little human, a person she can wrap her arms around, whose soft skin she can touch, whose sweet babyness you can still smell - is going to cease to exist, to stop breathing and laughing and crying.

Their trek to Cape Town ended at the Red Cross Children's Hospital, only to be told that there is nothing they can do for him. What does that even mean? Is his condition inoperable? Apparently not. Is it because we don't have the skills in South Africa? I always thought we did. Is it the money then? Probably.

If 200 000 people donate $10 each, we'll have enough money to get Muzzammil to Boston Children's Hospital. If 100 000 people donate $20 each, we could get him there. If 40 000 people donate $50 each - we could get him there. Please consider supporting this cause. Donate here: https://gogetfunding.com/muzammils-heart-surgery/

Muzammil is a little boy who is just 2 and a half years old. He is suffering from Heterotaxy Syndrome. It is a Rare Birth Defect which causes the internal organs to be abnormally arranged. He is not growing because his heart is enlarged and it uses all his energy. He needs multiple Heart Operations.

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Update posted by Natasha Nathoo Joel On Dec 13, 2016

We have received a confirmed quote and we will need $150,000 to cover the Pre Op Observation, the Surgeries and Post Operation Treatment and Medications. This excludes travel expenses and accommodation to Cape Town and USA.

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Update posted by Chantal Bezuidenhout On Dec 12, 2016

A little more info on the current situation with this little boy. I think it helps supporters understand a little better exactly what his family and him are going through.

Muzammil is a little boy who is just 2 and a half years old. He is suffering from Heterotaxy Syndrome. It is a Rare Birth Defect which causes the internal organs to be abnormally arranged. He is not growing because his heart is enlarged and it uses all his energy. He needs multiple Heart Operations. These are the immediate problems that need to be addressed through life saving surgery:

*He needs a Shunt for his single ventricle and his Cyanosis (the bluish discoloration of the skin and mucous membranes, due to the tissues near to the skin having low oxygen saturation) so that he can get oxygen into his lungs. This first operation alone costs R500 000

*He will need another operation for his valves to be repaired. They are leaking, and this is causing his liver and kidneys to fail

*He will also need an operation to reconnect his great arteries which are also deformed.

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Update posted by Natasha Nathoo Joel On Dec 11, 2016

He needs to go and see the Paediatric Cardiologist, who will do an echocardiogram so that we can send it to be reviewed by Boston Children's Hospital.

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Update posted by Natasha Nathoo Joel On Dec 11, 2016

His condition is deteriorating day by day and in need of urgent assistance by means of funds as his not on medical aid.

Our intention is to get him the best possible assistance. Boston Children Hospital in Massachusetts, USA specialises in Heterotaxy Syndrome and Congenital Heart Defect.

May the Almighty accept all your efforts in contributing whether monetary or duahs/prayers.

Thank you in advance.

Thank you to all involved in this initiative May ALLAH SWT bless you all abundantly in this world and the hereafter.

Please keep Muhammad Muzzammil in your duas/prayers.

For more information, you may contact myself Zubeid Hendricks on +27632205343

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Update posted by Chantal Bezuidenhout On Dec 11, 2016

So - there is this little boy I have become acquainted with. He is a bright child who used to be extremely helpful before he got so ill. As 2 year olds do, he would always help clean up round the house. He has, until now, always been extremely bubbly and very loving. Since falling ill and being hospitalised he doesn't talk or smile as much, even with his parents. He lay in hospital for weeks not talking or smiling. It was hard for his family to see him like this. He didn't want anyone to touch him. He is now suffering from separation anxiety and is fearful of hospital and being alone.

Muzzammil is suffering from Heterotaxy Syndrome and needs numerous operations to save his life. You can donate to this cause via this link: https://gogetfunding.com/muzammils-heart-surgery/
Please like MHS Muzzammil's Heart Surgeries page to keep up dated with our fundraising campaign and to find out more about Heterotaxy Syndrome.

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You are in my prayers

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May Allah Grant him full shifaa , Aameen

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