Multiple Myeloma, my Mama didn’t know yet suffering!

I chose to have this title: Multiple Myeloma Cancer: my Mama didn't yet suffering! Cause she doesn't have any idea about what's going on to her body. Yes, she know the idea of blood abnormality and bone pain but the idea of having this form of cancer, we cannot contain this feeling telling her the truth. We know how will she treat her condition seriously and we don't want to give her this hardship. Better that me, my sister will suffer to fight for her and do all that we can, to feel her comfortable and to set aside the idea of her being deeply sick.

I chose these pictures because I can see how lively and happy she is. But now, she's always in bed and we bring food all the time. We've lost our father since 2013 because of stroke. So it's only me, my sister and my mama and few relatives in the house.

So here's the story,

Mama was diagnosed last October 2015. Been almost 2 years this coming October 2017. But before that, she undergone several blood transfusions and other tests for we do not know she's now suffering from a very rare disease. Bone marrow happened October of 2015. Right after that, we do have monthly check up and laboratory up until now. Medications was, dexamethasone, melphalan, thalidomide, prednisone. Those are the primary prescribed meds for her. Sadly, several pneumonia attacked my mama. So those medicines have to stop and needs to undergo antibiotics.

Luckily we were able to give her the antibiotics. (tazobactam), but this very moment, now is the time I have to be confident on posting this and ask for a helping hand. This month of September, every week, we came to the hospital but the doctor got no choice but to delayed the medicine cause the white blood cells or WBC is not in the line and her body couldn't take it on a positive work up. Her immune system really turned down. dexamethasone, melphalan, thalidomide, and prednisone as per the doctors are not all working.

I don't know if I have to let go and be with her in the house instead of us, going to the hospital. But seeing her weak, and looking her suffering from bone pains, I can't resist but really attend for her to the doctor. We are asking for a little help for my SUPER WOMAN. Before, I expect to accept already what happening to mama, but now, I don't know, I am only 24 years old and about to give back what she had done for us. And my sister is 19 and about to graduate next year. I want to be with her for no reason. I think no one in this world would contain this kind of sadness if you know that your beloved mother is suffering, and suffering from a very rare disease. As of now, we badly need the Bortezomib or Velcade. This is the only solution for her not to have aggressive condition. This is an anti-cancer drug. Cost of this in the market is 28k and 98k.

Doctors mentioned that this drug is only half that can be use, disadvantage of which is this is not going to be use the next. So if we could provide this, we will give the half to the other patient. (We already have contact now) I hope that this means so much to you. I would appreciate even a single cents. I woudn't risk posting my mama, myself and my sister's picture here if I am not really sincere.

TO GOD BE ALL THE GLORY.

PLEASE PRAY FOR US! Love your mother, father, your parents. It's really hard.

Lorenze