Maggie is 11 years old and has been diagnosed with a rare form of cancer associated with a genetic mutation called DICER1 Syndrome.
This funding site will help the community support the family with medical expenses and enable the family to afford alternative treatments to offset the negative effects of chemotherapy.
I plan to provide updates on this page regarding Maggie's progress. Hopefully this will keep all friends and family informed without having to ask the family too many difficult questions.
On the evening of May 2nd Maggie had cramps that were painful enough to seek emergency treatment. Later that evening, after being rushed to Boston Children's Hospital, she had her right ovary removed after they discovered a clementine-sized tumor.
The tumor was sent to pathology and after 2 weeks of testing, Maggie's parents were told the tumor was malignant and the cancer was caused by DICER1 syndrome.
Maggie is being treated at the Dana Farber Jimmy Clinic in conjunction with Boston Childrens and has an incredible team of medical professionals overseeing her care and treatment.
There is no definitive prognosis being given as this is a rare manifestation (ovary) of a rare cancer syndrome (DICER1). There is no historical data available to draw upon unfortunately. That being said, her medical team and family are hopeful and optimistic they can treat Maggie successfully.
She began aggressive chemotherapy treatments on May 30, 2019. She has suffered nausea and sleepiness from the first round, which packed a punch. Maggie will be returning to the Jimmy Clinic each week for chemotherapy on an outpatient basis.