Pat Thomson is a mother of two and wife for 43 years. She has been battling a genetic disorder since 1972. Polycystic kidney disease is a genetic disorder that eventually leads to kidney failure. Pat went into kidney failure in June of 1998. Since that time Pat has had her ups and downs of medical treatments, unfortunately she is currently on a down. Due to her long battle with this disease the side effects of the treatments have taken their toll. On June 19 she underwent surgery to improve circulation in her legs. On June 20, she had a partial right foot amputation and toes remove from her left foot. There is a 50:50 chance that even with these surgeries she will need further amputations. No matter the outcome of these surgeries, they will greatly change her mobility. Due to these amputations major changes will need to be made to her home to aid with her mobility. Any funds raised will help make these changes less stressful on her family.
Pat's Medical Ups and Downs
Polycystic kidney disease is a genetic disease that causes multiple cysts to grow on the kidneys. The cysts are numerous and are fluid-filled, resulting in massive enlargement of the kidneys. This disease can also damage the liver, pancreas, heart and brain. Pat also has cysts on her liver. As the cysts enlarge they compress the neighbouring kidney tissue, compromising the kidney function. This happened to Pat causing her to go into kidney failure in June of 1998.
Pat started on dialysis that year and was the 16th patient in Canada to use nocturnal dialysis. Conventional dialysis consists of a patient traveling to a clinic three times per week for a four hour treatment. With nocturnal dialysis patients are trained to provide the treatments in their home six or seven nights per week for six to eight hours per treatment. This form of dialysis has been found to have many benefits over conventional dialysis.
Pat was fortunate to receive a kidney transplant in December 2000. Although her quality of life greatly improved with a kidney transplant she was still required to take immune suppressing medication to prevent organ rejection. Pat has been taking these medications several times daily for the last twelve years. One of the drugs that she has been taking is prednisone. Unfortnuately longterm use of this medication although necessary to keep her alive also has severe side effects. Some of the effects of longterm prednisone use are - diabetes, greater suceptibility to infections, steroid-induced osteroporosis (weak bones), painful hips and shoulders, severe joint pain, cataracts, facial swelling, weight gain, fatigue and weakness. For Pat these side effects have led to mutlitple infections, some of which that have been severe enough requiring hospitlization, a severe case of shingles infection, cataract replacement surgery in 2005, she developed diabetes in 2009, she has broken her left arm, bones in her left foot and left tibia and had a right hip replacement in December 2010.
As ploycystic kidney disease is a genetic disorder both her childeren were born with the disease. Her eldest daughter Cynthia Thomson died from pancreatic cancer in 2005. This is a rare complication of the genetic disease.
Due to the on stresses on her mind and body Pat took early retirement in the summer of 2008 from a job she loved at Realspace Property Management.
Although the donor kidney worked very well for many years it started to fail in 2012 and she was again in kidney failure by December 2012. Pat spend over 6 months in hospital while doctors tried to safe her donor kidney. She became very weak and frail losing 54 lbs. She started back on nocturnal dialsyis at home in January 2013.
Muscle wasting and fatigue left her with limited mobility. She started using a wheelchair but was still able to take a few steps. To make her mobility issues even worse she has develop peripheral vascular disease a complication of the diabetes. This means that she has limited blood supply to her feet. Blood supply provides nutirition and oxygen to the tissue, when this is missing that tissue dies. This brings us back to present and her current situation.
Where the $$ will go...
Pat’s biggest need is for a handicap accessible bathroom. It has been estimated that renovations of her current bathroom would cost $9000. A new wheelchair and other accessibility aids such as a hydraulic lift and commode would cost $7500. In the worst case scenario full amputation of both her left and right feet would require a specialized vehicle to help transport her to her ongoing medical appointments, at an estimated cost of $45,000. Hopefully the first few surgeries will be successful and she won’t need full amputations but plans need to be put in motion in case the worst happens.
Any support would be greatly appreciated. Please forward on to anyone you think can help.
Thanks for all the support in advance!