Miracle Baby Expenses/Help

Update posted by Anthony Roberts On Jul 06, 2013

Anthony had an awesome day yesterday. He's practicing his flipping which is a mini milestone for him.knocked his head and shocked him. Had ti tell him its ok to keep flipping. His first tooth is coming in very sharp loved watching the fireworks wasn't scared at all so proud how far he's came  therapy is doing good 4 times a week is good for him.

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Update posted by Anthony Roberts On Jul 01, 2013
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Update posted by Anthony Roberts On Jun 22, 2013
in the last 7 months  we have found out Anthony was majorlly mistreated at jackson Hospital in Miami Hospital He was prematurely taken off Mothers milk and the "doctors" wrote a script that is requiring Anthony to be on Formula for the next 2 years ( due to them say he has an allergy (even though he was to young to test for allergies) His sleep study at University of Miami was mistreated and they misdiagnosed his current situation ( they felt he didnt need a 24/7 heart monitor then went back and said they unfortunatley misdiagnosed him) he is wearing one now because his heart stops 3-4 times a day  and the current hospital and doctors Joe Dimaggio feel he needs it to properly plan for his next treatment(s)Anthony was and is receiving weekly shots which are planned to end 6/27  for and to control possible infection in his lungs , he is on prevasec for his Mixed Apenia and reflux whiich we found out he had and was not treated while inside jackson he is going to occupational  therapy every week for the next 3-5 years  due to his preamturity and underdevelopement he is going 3 times a week for physical therapy 3 times a week for the next 2 years due to his "stiffness" and lack of control due to his current conditions (very hard on him)he is scheduled for a MrI in 7/13 _ Anthonys doctor feels after in house testing he may have spinal fluid backup andwants to have his head checked for possible bleeding in or around the brain  due to an unexpected growth and discoloring on his skullthis is very hard and getting very expensive    dont know where or who to turn to for help
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Update posted by Anthony Roberts On Apr 08, 2013
This has been a hectic couple of months. Anthony is on an apnea monitor. It has gone off a couple of times but he's getting better. Since I no longer have a job and can't get unemployment we had to move. The place is really small and Anthony has not adjusted to it yet. He is getting all his shots and each time he cries louder I guess he's really feeling it. He is still on special formula due to allergy to my breast milk. We are starting to introduce juice and other foods which he still chokes. Anthony is now going to get physical therapy and ITDS therapy to help me work with him and bring him to his mile stones which he is behind on some of them.
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Update posted by Anthony Roberts On Dec 14, 2012

ever since he was discharged fromt that horrible hospital and they put  him on formula  because they told me he was allergic to moms breast milk - even though they confirmed he was to small young to test for allergies - eating the formula but waiting for the time to switch to my breast milk 

still keeping us up at night    but hes starting to sleep more on a schedule 

 

so glad hes home   but stressing over everything else - dooesnt see like anyone is willing to assist us and point us in the right direction 

 

worried   and not sure what to do  

 

getting desperate 

 

 

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Update posted by Anthony Roberts On Dec 10, 2012

visited WIc today was told that it is being lessened because Anthony has a "allergy" to breast milk and the solution is to take back some of the food he qualifys for. was told when his allergy improves the amount of food will increase on the program. still looking for some help - moms unemployment is stil is the denied/ appeal process - things arent inproving - solutions to the unexpected issues arent easily being offered to improve our situation

but Anthony is home and love seeing him daily

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Update posted by Anthony Roberts On Dec 10, 2012

visited WIc today was told that it is being lessened because Anthony has a "allergy" to breast milk and the solution is to take back some of the food he qualifys for. was told when his allergy improves the amount of food will increase on the program. still looking for some help - moms unemployment is stil is the denied/ appeal process - things arent inproving - solutions to the unexpected issues arent easily being offered to improve our situation

but Anthony is home and love seeing him daily

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Update posted by Anthony Roberts On Dec 09, 2012

 

Anthony has been a home for about a week now - He is slowly but surely improving and getting stronger everyday. Can tell he is not fully adapted to the "quiet" that wasnt at the hospital lol- but in due time he will learn to relax and sleep at home -

Since He has been Home the "bills" mom and dad are dealing with are unwinding and getting out of hand - Need a Holiday Miracle to build and keep the home Anthony was brought home to

He is starting to sleep better in his bassinet and luv it when mom takes care of him and when daddy holds him

Gonna be tough and a fun ride all at the same time

 

 

 

 

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Update posted by Anthony Roberts On Nov 18, 2012
Just got a call from dr Anthony has a bladder infection. :( he will be on antibodies til Friday. Won't have his surgery cuz they don't want to risk more infections. This is one tough guy. Mommy still goes 2 to 3 times a day. Parking is getting expensive. Anthony will need to be on that special formula Elecare. Which is going to be very expensive. Anthony keeps fighting which is great
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Update posted by Anthony Roberts On Nov 17, 2012
Anthony took a step back. He's back in unit b. Mommy thought baby was going to be home for thanksgiving. Anthony had to be rush to preop. His intestines went down to his ball sack. He has a hernia too. He also has blood in his stool and won't get milk til Monday. He's on antibodies and iv. His doctor is going to set up for the surgery regarding the hernia. Poor little guy has to stay for 3 weeks.
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Good luck to both of you.

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Posted On Nov 03, 2012

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Anthony Roberts

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