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It's been 3½ months since Mioné Malan was diagnosed with ABL (Acute Biphenotypic Leukemia) - a very aggressive Blood Cancer. Unfortunately her body turned out to be chemo resistant, so the Medical Council refused that Dacogen is used again as she did not really respond to the chemo that she has been receiving since being diagnosed. She needs to get into remission as soon as possible....
There is a prelim bone marrow donor - they are awaiting blood tests to confirm 100%. Problem is, she first has to be in remission before they can do the transplant.
After the Medical Council refused to continue with the Dacogen, Amgen (the manufacturer of other medication that has not been registered in SA yet), gave the go ahead for Mioné to receive the treatment.
On Wednesday, 25 September 2019, a Lumber Punch was again done and they began giving the new medication (Blincyto). She will be spending the next 28 days in hospital again as this is a 28 day treatment - non stop. The cost for the 28 day medication is approx. R200 000!
After three weeks, another LP will be done and they'll then decide on the next step.
The unpaid medical aid bills have also started to show up. We also urge people to register as bone marrow donors to help others with the same illness. South Africans can register here: https://sabmr.co.za/ (The South African Bone Marrow Registry).
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