Michal’s future life

Update posted by Anna Ciesielska On Dec 12, 2017

Our day starts before 9 am, we have two children and Zuzia is 3,5 she needs a lot of attention and of course care because she is not able to do a lot of things in this age. At 9 am every morning I feed Michal, I change his bandages, I need to cream his whole body, carefully clean his eyes, cream his eyes with a different cream. At 1 pm the routine starts again and it repeats every 4 hours, cleaning , creaming , feeding, new bandages, a bath. There are no hair on Michal's body and probably they will never grow and if they will they will grow only on half of his head, what is more he sweats a lot and this cause a threat of overheating or having a cold. Michal does not hear for now and we don't know will he every hear. His ears has not developed yet and there is some skin inside his ears which continuously grows. The skin all over his body grows 14 times faster than an ordinary person's skin. Every day we need to take the skin off during the baths by giving him a gentle massage. What is more the skin grows on and in his nose and we need to remove it gently because if we don't he may have breathing difficulties.

This is not an easy day routine but we love him with all our hearts and we want him to live.


One more time thank you for your support.


God bless you all.

Add a Comment

photo

Samantha Carter

Backed On Dec 16, 2017 Amount Hidden

photo

Aleksandra Kaminska

Backed with £20.00 On Dec 15, 2017

photo

Maja Golab

Backed On Dec 15, 2017 Amount Hidden

photo

Thinking of you all at this time. Audrey x

Gaynor Whitbread

Backed with £10.00 On Dec 14, 2017

photo

Anonymous

Backed On Dec 13, 2017 Amount Hidden

photo

Best wishes xxx

Jo Durr

Backed On Dec 13, 2017 Amount Hidden

photo

Anonymous

Backed On Dec 13, 2017 Amount Hidden

photo

My thoughts are with your family, and your little one this Christmas x

Gaynor Whitbread

Backed with £20.00 On Dec 13, 2017

photo

Malgorzata Leszczyszyn

Backed On Dec 13, 2017 Amount Hidden

photo

Anonymous

Backed On Dec 13, 2017 Amount Hidden

SHOW MORE COMMENTS
Add a Comment

photo

Anna Ciesielska

Campaign Owner

flag Derby, uk

send a message

photo

Gaynor Whitbread

Following Since Dec 13, 2017

photo

Oliver Rymond

Following Since Dec 13, 2017

photo

Ingrid Wynne

Following Since Dec 13, 2017

photo

Katarzyna Kotlarz

Following Since Dec 12, 2017

photo

Aleksandra Molik

Following Since Dec 12, 2017

photo

Charlotte Randon

Following Since Dec 12, 2017

photo

Kerrie Rice

Following Since Dec 12, 2017

photo

Sally Gibson

Following Since Dec 12, 2017

photo

Jane Etherington

Following Since Dec 12, 2017

photo

Danuta Cidylo

Following Since Dec 11, 2017

SHOW MORE FOLLOWERS

Can’t Donate? Sharing Helps Too!

Did you know a 10 second Facebook share raises an average of £25??

Share on