A little princess named Lynna Jones was born on Halloween 2011, she is my miracle baby. When she was born we knew she had something going on in her head. Her head measured bigger than what it should be based on the growth chart. They did an MRI and diagnosed her with hydrocephalus. The doctors monitor it with an MRI every 3 to 6 months because it isn't advanced enough for a shunt. She had a check up MRI in February 2017, which showed everything normal. No abnormalities, growths, etc. Up to date August 2017, Lynna started kindergarten but unfortunately 3 Weeks into school on September 11, 2017 5 year old Lynna was admitted into Childrens hospital of Dallas, after collapsing and unable to move. The Dr did a CT scan and showed a large mass on the right top side of her brain. September 12, 2017 they did an MRI and confirmed our worst nightmare, the neurosurgeon came in and said it's a large tumor.
September 14, 2017 they did a craniotomy to remove the tumor but, unfortunately they
were unable to remove all of the tumors. On October 8th, they did
another craniotomy to remove as much as they could but yet again
unable to get all of the tumors. What was left were "crumbs of
tumors" meaning little pieces. They biopsy it and results were
"Inflammatory Myofibroblastic Tumors", surprising because
this type of tumors are found in lungs and only about 10 ADULTS get
diagnosed a year. So Lynna is first pediatric and first to have it
in her brain. So almost a month later on November 5th they did an
MRI, not only has the tumor grown back but has also spread to the
left top side of her brain and in the frontal lobe of her
Lynna started a strong dose of radiation treatment for 6 weeks straight Monday through Friday. She completed that on December 27, 2017, sadly the treatments did not help the tumors.
Lynna goes to MD Anderson hospital in Houston Texas. She spent 8 months of 2017 there for chemotherapy treatment. She has had 3 rounds so far and currently as of April 2017 she is on a break from chemo. Lynna has an MRI scan every 3 month's. Her next MRI scan is May 18, 2017. We should find out if she will need more chemo treatments. Lynna and her mommy Christina live in Dallas Texas.
Lynnais an amazing little girl, her smile brightens up any room. Her laugh is unforgettable and contagious. She loves tinkerbell, hello kitty, monster high, and Barbie. She is a major girlie girl!!! Lynna prays daily not for just herself but for everyone that is struggling and in need of encouragement. That's just the type of kid Lynna is. She also loves to sing and dance. She has big dreams of becoming a doctor, singer, and dancer. She is simply amazing!!
Any help is greatly appreciated and prayers are highly needed. Will update as new information is received. We hope to use this form of social media to not only spread awareness of this form of tumors but bring the community together in a manner that we can help Lynna fight the biggest battle of her life. Together we will beat this.
As you can imagine it is very costly (+300.000$) for a family member that is fighting cancer. Christina is a single Mommy and tending to Lynna and her medical attention, she is unable to work. We want to bring everyone together and help relieve some stress of everyday living expenses for them.
Thanks to my family, freinds , the association of parents of the school of lynna, who have so gladly helped us to organize collections in the neighborhood with the neighbors, with our neighbors in our church, in the school with parents and friends ....
We have recolected +250.000$ but still left, thanks GOD, ONLY 59.000$.
For that, one friend has recommended us this site, where good people like you help people, like us, who have neither the means nor the resources to help my little one.
So we will thank all those who want to give some help to our daughter.
We would also like to thank all those who bother to read our project and share it with more people known to him, extending and enlarging the number of people this help call can reach. We will pray for all of you and for your good will and health.