This page is for our little wonder, Matthew. We created it for him.
He also suffers from spinal muscular dystrophy (SMA).
The disease is characterized by progressive muscle weakness caused by the loss of specialized nerve cells called motor neurons in the spinal cord and the part of the brain connected to the spinal cord.
Motor neurons control voluntary muscle movements, including those of the arms, legs, chest, face, throat, and tongue. The loss of motor neurons leads to weakness and atrophy in these muscles. Fundamental activities using muscles, such as walking, sitting up, controlling head movement, breathing, and swallowing can be affected by the disease. Movement progressively becomes slower and the ability to control voluntary movement may be lost completely in the later stages of the disease.
So far, I've never gone out of the way to talk to me. "Why don't you go now?" "Why do you lie?"
It didn't even occur to me to ask for help.
I feel that there is still a good feeling in people.
Maybe we could be better, too.
We are asking for help with daily developmental treatments, special equipment needed for the home gym, which will strengthen Matthew and make our family's everyday life easier.
Also, the biggest challenge right now is moving from our current 5th floor panel flat to a barrier-free family home in our city.
Finding the right cottage is already underway, and of course we do not want to buy it from donations, but home improvement and accessibility will not be an easy task.
We would still like to ask you for help in any way we can.
Many thanks to everyone who helps us in any way!