Maggie Davis

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Update posted by AndyJohnston On Mar 03, 2015

story of our life, good news followed closely by not so good news. We will need to radiate the lower part of her head from ear to ear. Possible side effects include; learning difficulties as the brain will receive some radiation and permanent hair loss in some or all areas, some people have "patchy" growth afterwards. They will radiate the primary tumour as well even though nothing showed up in the scans as that is standard protocol. This may effect her kidneys but hopefully only the top portion. I know that we have no choice as it's between this and not making it but it sucks and I hate that we have to put her through this. She will do the preparations next week and start the week after.. sigh....here we go again.

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Update posted by AndyJohnston On Mar 03, 2015

Update on Maggie's scans:

Today we got the scan results back. We had a CT, MRI, MIBG and Bone scans. Long story short it looks really good. The MIBG scan only picks up active cancer cells in the body (active disease), while the others look and measure masses in the body. The MIBG only showed a small spot on the base of the scull. The rest appear to be dead masses in the body. Besides that there was some "activity" in the bone marrow but the doctor thinks it is more likely to be the bone marrow recovering after the transplant than active disease, but we will not be completely sure until her bone marrow has completely recovered and we can do the bone marrow biopsy. We will have a meeting with the radiologist this afternoon to discuss what they will radiate and will start preparing for the radiation treatment next week. The doctors are really happy with where she is now as are we. A huge thank you for all our friends and family for the continued love and support on this journey of ours. We honestly don't know how we would have made it this far without you. We are getting there!!!!

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Update posted by AndyJohnston On Feb 01, 2015

Just got Maggie settled down for the night at the Ronald Macdonald house. Ben and I about to enjoy a much needed glass of wine. We will be back in hospital tomorrow and Sunday for post transplant hydration. Hoping to get our flights for Monday. Went down to settle our bill at the Macdonold house and found out it was already taken care of. Huge thank you to my friend and old roomie Nikki JJ and Brad for doing that for us. such a HUGE help!! God where would we be without our friends. We have the very best!!!

 
 
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Update posted by AndyJohnston On Feb 01, 2015

Day +17: Neutrophils doubled overnight, 0.71. WBC, hemoglobin and platelets up too. Officially ingrafted. Waiting for rounds to see if this means Ronald McDonald house for the weekend or home. Now to try to convince Maggie to wear a mask, her immune system will still be compromised for a while yet. God help anyone who sneezes next to her lol. Have my alcohol and wipes ready!

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Update posted by AndyJohnston On Feb 01, 2015

Could be getting out tomorrow. Go neutrophils!

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Update posted by AndyJohnston On Feb 01, 2015

Day + 16: Neutrophils 0.36, WBC 1.6. They are hoping we may ingrafted tomorrow or Saturday. Fingers crossed. We need a neutrophil count of 0.5 to be considered ingrafted. She will not much of an immune system but enough to get us home!

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Update posted by AndyJohnston On Feb 01, 2015

day +12: WBC 0.4. Playing and feeling pretty good. Reducing TPN and she is drinking a bit and picking at a few things. Hope now her mouth etc will start to heal as her counts come back up. Thank you all for your continued support.

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Update posted by AndyJohnston On Feb 01, 2015

Ten days of isolation and we are all going a bit loopey. Imagine how hard it is for some children and their families who are living this way for months or years as they wait for a bone marrow match! If you are healthy please consider adding yourself to the bone marrow/stem cell registry. You could literally save a life, perhaps the life of a baby or child. We shouldn't be loosing children or anyone for that matter, because we can't find a match but it's happening. Especially looking for males ages (17-30). Please share and contact Canadian Blood Services for more information. All it takes is a cheek swab to register.

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Update posted by AndyJohnston On Feb 01, 2015

Spot the teacher and therapist's child.

Dr to Maggie: "how are you today?"
Maggie: "Maggie is feeling a little bit sad because....

Dr to us: are you sure she is just two and a half?

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Well done guys and it must have been a hard slog!

Lyn and John Roberts

Backed On Apr 08, 2015 Amount Hidden

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Y Cook

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Guest

Backed with £25.00 On Apr 07, 2015

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Gareth Wales

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Fantastic effort Andy - and such a fantastic cause

Nick C

Backed with £20.00 On Apr 02, 2015

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Wendy Bulloch

Backed with £10.00 On Mar 26, 2015

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GET WELL SOON COUSIN MAGGIE!!! ALL MY LOVE

Richard foulkes

Backed with £100.00 On Mar 25, 2015

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Julie Coulter

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Tall Sandy

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Brimmond Health Centre

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Ben Davis

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