Lyla received her new special heart on January 7, 2016. She is currently recovering and her parents are needing help until they can go home three months from now. They are still unable to work while they stay to help their baby girl recover. Anything helps right now.
Lyla Grace Santos was born March 18, 2014. She was born with Cognitive Heart Defect. After she was a week old on March 25, 2014, Lyla Grace had to have open heart surgery to correct her aortic arch. She was then put on the heart transplant list and would eventually need a new heart. Almost a year later and after many heart cauterizations, Lyla Grace has been moved from being listed a 2 on the bottom of the heart transplant list to the top of the list as a 1A emergency. Lyla Grace needs a new heart. Her heart is no longer able to be fixed with heart cauterizations and medicine. Now that she has been moved up to the top of the list in Dallas, Texas, her parents Matt and Amy are unable to be more than two hours away from the hospital just in case a heart does come in for Lyla. Matt and Amy lives more than three hours away in Abilene, Texas.
Matt was recently released from the Army due to medical in September 2014. Where he served three tours altogether while in the Army. So as of March 1, 2015 he will no longer get medical insurance from the military. Amy has been unable to return to work due to Lyla's condition.
Matt and amy will need help with hotel, food, and other necessities being so far from family and friends. After getting the news of their baby girl needing a new heart, the last thing they need to be concerned about is money. Please if you can help this family with donations and always prayers. Please pray for Lyla Grace and her family.
Thank you and God bless all of you.