luis living life

Fundraising campaign by gembo1985
  • £385.00
    raised of £5,000.00 goal goal
7% Funded
19 Donors
Help this ongoing fundraising campaign by making a donation and spreading the word.
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Luis was born with a chromosome 1p36 deletion (Google it). 

For luis this means he spent the first years in and out of hospital,  He has holes in heart, he eats like a horse but unfortunately for him its not enough so he has a gastrostomy (tube in his tummy to feed him). Luis has gastric reflux too, with other bits and bobs.

Developmentally luis now 7 and a half he can bum shuffle like lightning, stand with support for a few minutes if you are good a distraction )). 

Luis really struggles with communication most he understands far more than youd think but he is more or less non-verbal so we get lots of behaviour problems.

L

uis loves outdoors best but unfortunately its not inexpensive or always practical.  So we are looking into getting him a specialist bike (1500) a specialally made swing (1000) a covered soft play area for the garden too. 

 

Its ridiculous the amount of money these things cost, a typical child could get this stuff for 100 pound so why not luis

Im also hoping to organise a fundraising event in the summer

Fonate a penny or a pound or two even anonymous if you don't wish the world to know.

Thank you very much let luis have a fun filled life )

Organizer

Donors

  • Bravissimo Solihull
  • Donated on Jul 12, 2013
  • Good luck on reaching your fundraising target. With love from everyone at Bravissimo Solihull x

£50.00
  • Jude's nanny Trish
  • Donated on Jul 02, 2013
  • Hope your fundraising goes well and you get what's needed for Luis

£5.00
  • Sam's Mom
  • Donated on Jul 02, 2013
  • Keep plugging on Gemma, you will get there in the end. Have you done a carboot, that brings some cash in for your unwanted items

£5.00

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Donors & Comments

19 donors
  • Bravissimo Solihull
  • Donated on Jul 12, 2013
  • Good luck on reaching your fundraising target. With love from everyone at Bravissimo Solihull x

£50.00
  • Jude's nanny Trish
  • Donated on Jul 02, 2013
  • Hope your fundraising goes well and you get what's needed for Luis

£5.00
  • Sam's Mom
  • Donated on Jul 02, 2013
  • Keep plugging on Gemma, you will get there in the end. Have you done a carboot, that brings some cash in for your unwanted items

£5.00
  • Ranjit, Pinda and Arjan
  • Donated on Jun 01, 2013
£50.00
  • David Vickers
  • Donated on May 31, 2013
  • I hope you achieve your goal with out too much delay.

£10.00
  • Tina
  • Donated on May 31, 2013
£20.00
  • Tajinderpaal balbir singh
  • Donated on May 30, 2013
Amount Hidden
  • Rachael Boswell
  • Donated on May 29, 2013
£5.00
  • Kieren
  • Donated on May 28, 2013
  • From a friend of Ian Marrey. Good luck with the fundraising x

£20.00
  • Jude Marrey
  • Donated on May 15, 2013
£10.00
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£385.00
raised of £5,000.00 goal
7% Funded
19 Donors

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