LUCA URGENTLY NEEDS LIFE-SAVING MEDICINE
Fundraising campaign by
Marisa Elizabeth Barnard
-
ZAR71,210Donated So Far
The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate
Campaign Story
We are in a race against time to save little Luca’s life. At infancy Luca was diagnosed with a very rare and fatal genetic disease called Acid Sphingomyelinase Deficiency (ASMD), also referred to as Niemann-Pick Disease. Luca has Type A/B, characterized by:
- an enlarged liver and spleen
- loss of muscle tone
- failure to thrive
- possibility of neurodegeneration
Recent advances in the medical field have sparked new hope in our hearts for Luca’s survival. Unfortunately, the Olipudase Alfa medication from Sanofi, used in the enzyme replacement therapy that Luca needs, is only available in the USA. The medication needs to be imported and this has an immense financial impact on us as his loving parents. Due to the poor ZAR/$ rate we are unable to afford it and consequently save our child. He will be dependent on medicine for the rest of his life and @R184 000 per month (approx. R 2.2 million per year) we need all the help we can get to save Luca.
We will never give up hope and we long for the day that we can watch our little Luca run around and kick a ball with his siblings, go to school and hear him say he loves us too.
We BELIEVE this day will come. In the meantime, we need to buy Luca time and give him a more comfortable life. With your help, we know we can win this war. Our hope lies in GOD giving us the means to provide. Hope is our best medicine.
With endless gratitude,
Marisa and Christiaan Barnard
Organizer
- Marisa Elizabeth Barnard
- Campaign Owner
Donors
- Anonymous
- Donated on Feb 24, 2022
- Anonymous
- Donated on Dec 08, 2021
- Anonymous
- Donated on Nov 29, 2021
Wheelchair needed
Update posted by Marisa Elizabeth Barnard at 10:19 amluca is doing very well on his enzyme replacement that he gets every 2 weeks. His medical bills are howevery still very straining on his parents and he is getting too big to be carried around. He is in need of a special wheelchair so he can be transported around.
Donors & Comments
- Anonymous
- Donated on Feb 24, 2022
- Anonymous
- Donated on Dec 08, 2021
- Anonymous
- Donated on Nov 29, 2021
- Anonymous
- Donated on Nov 19, 2021
- Anonymous
- Donated on Nov 18, 2021
- Marlene Ferreira
- Donated on Nov 16, 2021
Sterk wees klein Luca. Ons bid vir jou
- Anonymous
- Donated on Nov 16, 2021
- Anonymous
- Donated on Nov 15, 2021
- Anonymous
- Donated on Nov 14, 2021
- Anonymous
- Donated on Nov 08, 2021
Followers
Support Campaigns
Create a support campaign in seconds!
Support campaigns allow you to get your own fundraising page dedicated to 'LUCA URGENTLY NEEDS LIFE-SAVING MEDICINE'
You'll have your own unique link that you can share, and all funds raised will go directly to 'LUCA URGENTLY NEEDS LIFE-SAVING MEDICINE'. It's the ultimate way to show your support!
Create support campaign