Love for Lillian

Update posted by Jamie Delarwelle On Nov 16, 2016
Lillian is now 10 months old and working hard everyday to meet the appropriate developmental milestones. When she turns a year old we will have another assestment done to track her progress. Lilly has finally begun the experience of eating solids and it's a slow process. We should be getting more information on her jaw surgery in the next coming months. When Lilly is about 18 months old she will have surgery on her right hand to correct it's functionality. Thank you all for your continued support,you have made it possible to never worry about gas for the 5 hour round trip to milwaukee, as well as the many other doctors visits and medication pick ups for Lillian. I am so very thankful for kind people. Thank you for your continued support with my family as we make this medical journey.
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Update posted by Jamie Delarwelle On Sep 29, 2016

Thank you for all the thoughts and prayers. As most of you know, Lillian was hospitalized from birth to almost 5 months old. She left the hospital with a g-tube, ostomy, many scars and medications as well as a long list of appointments to attend in preparation for her next surgery.

Now the time has come and her next open heart repair was scheduled for September 9th with the assumption that we would be home in about 2 weeks. Sadly that has not happened...

Lillian did very well with the repair and has been anxiously awaiting home so when news arose of a life threatening complication that can arise from heart surgery our hearts just dropped.

We've stayed in good faith and positivity until this hospital stay is now approaching a month.

We are having issues with needing to pay back the social security we received for our financial needs

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Update posted by Jamie Delarwelle On Sep 29, 2016
Thank you all for your continued support for our family. As most of you know Lillian has been in the hospital from birth to 5 months old, due to a complicated diagnosis and issues with her surgeries. She is now back at the hospital for her second hospital stay and hopefully a full heart repair. We were told to prepare for a 2 week stay aND now it has almost been a month. The reason I am posting this again is because social security has a policy where if your child is admitted to the hospital for 30 days or more yout are not considered in need of assistance because the child is taken care of by the hospital. Although social security is provided to families with a disabled child who are in financial need. They ask that any payments made while staying at the hospital for 30 days be returned. So long story short. I need to repay money that was already spent on rent, utilities, gas and food. The total is $760.00, any help would be greatly appreciated. Thank you
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Anonymous

Backed On Oct 18, 2016 Amount Hidden

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Anonymous

Backed On Sep 30, 2016 Amount Hidden

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Anonymous

Backed On Sep 29, 2016 Amount Hidden

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Wishing you all the best! with love, Christopher, Sevgi & Quentin

Christopher, Sevgi & Quentin Bell

Backed with $250.00 On Apr 15, 2016

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I have and will continue to pray for little Lillian and her whole family to keep strong. I work with Jeremy, don't know how he does it but he holds it together while trying to work ten hours a day. Lillian will heal and thrive! She's strong like her dad!! My heart goes out to you all! ❤️🙏

Katie Geurts

Backed On Apr 08, 2016 Amount Hidden

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You came to mind, so I stopped to pray, I asked the Lord Jesus to make you a way. To give you his peace and his strengthening grace, to give you endurance while running this race. I asked him to help when the path seems unclear, to bring reassurance he'll always be near, To show you each promise he's made will come true... I'm praying, in all things, He'll carry you through. (A prayer I found that seems so befitting to you....Love from Aunt Janelle)

Janelle Gwinn

Backed with $50.00 On Apr 07, 2016

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Thinking of your family.

Tony and Lisa Ghiringhelli

Backed with $25.00 On Apr 07, 2016

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Jamie, We're praying that you get the support you need--financially & otherwise. Sending our love to you and Lillian and everyone there. Erin

Erin & Michael

Backed On Apr 07, 2016 Amount Hidden

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Lillian your a fighter keep it going. mom & Dad keep strong. Keeping positive thoughts for this little person & her parents so they can all be together at there home.

Joanne Meni

Backed with $50.00 On Apr 07, 2016

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Jamie Delarwelle

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sharon bodenus

Following Since Apr 07, 2016

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Janelle Gwinn

Following Since Apr 07, 2016

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