Our 5 year old niece & granddaughter has an aggressive brain tumor. Family & friends are uniting to raise money to cover medical costs.
On July 28th our little girl was diagnosed with a mass in her head. After additional MRIs and a biopsy we learned it was an inoperable brain tumor called an Anaplastic Thalamic Astrocytoma.
Since that day our world has been turned upside down. Our entire family has been thrown into a crash course in pediatric oncology, psychology, neurology, and physical therapy. We've also seen how incredibly challenging a cancer diagnosis is to handle and process day-to-day, especially for a divorced family.
Our little Emma is five.
She had her biopsy performed in early August, 2016. Upon awakening the next morning, she said to her dad, “It just doesn’t seem fair”, when asked why, she exclaimed, “Well, because the doctors don’t know what it feels like to be doctored on all the time”.
Later in August she said, “You don’t want to be me, I see a lot of doctors.” She is fiercely fighting the “boo-boo in her head that makes her sleepy” and says that the “The fairy potion tastes like cotton candy and farts.” But luckily the “Rainbow Machine doesn’t hurt.” She gets tons of support from her entire family and has been incredibly strong. On her last day of radiation therapy, she kissed the machine, held up two fingers, said “Peace out” and blew kisses to the medical staff.
The bravery she has exhibited over the past 4+ months has been remarkable. She has not shed a single tear and even said to her mom, “I understand, sometimes you just have to deal with things that you don’t want to deal with”.
Like many kids with cancer, it is really hard to know if you are winning. We all have pulled every connection, done hours of online research and the discussion never stops. The pressure on everyone is massive which causes confusion, anger and misunderstandings which is not uncommon.
And the pressure is also financial. The Lundell family is determined to pay half of all costs that, unfortunately, are not covered by a premium Aetna family insurance plan.
There are not a lot of cases like Emma's, therefore it has become very clear that even the most experienced doctors do not know what will work. The family has sought out the advice from the leading Alternative / Integrated Therapy Oncologists around the world. Unfortunately, some of the highly effective “off-label” drugs are not covered and are astronomically expensive.
Emma is constantly in all of our thoughts, hearts and prayers and we are rallying together in order to choose the best course of action for little Emma's treatment. We are looking to raise money to support her cause and pay our 50% share.
Any contribution, small or large, is truly appreciated.